MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
Review: Fabry Education and Resilience Project 2025
Discover the core themes our Fabry community discussed throughout the Fabry Education and Resilience Project and access helpful resources to navigate life with Fabry.
Family communication - Alison Wilson
Alison Wilson, Senior Support & Advocacy Officer at the MPS Society, explains how Fabry is inherited and highlights why family communication matters.
Nutrition - Dr Seema Kanwal
Dr Seema Kanwal discusses best nutrition practices, possible symptoms of GI problems and options for their management.
Living with Fabry disease - David Moreno-Martinez
Dr Moreno-Martinez talks about living with Fabry disease and what it means to navigate a rare genetic condition at Fabry Matters Conference 2024.
Katrina's video - Fabry Awareness Month
Takeda have produced a film for Fabry awareness month this April highlighting what it is like to live with Fabry.
Simon's video - Fabry Awareness Month
In this video Simon discusses what life was like before he received a diagnosis and how it now affects him and his family.