MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
Family communication - Alison Wilson
Alison Wilson, Senior Support & Advocacy Officer at the MPS Society, explains how Fabry is inherited and highlights why family communication matters.
Nutrition - Dr Seema Kanwal
Dr Seema Kanwal discusses best nutrition practices, possible symptoms of GI problems and options for their management.
Living with Fabry disease - David Moreno-Martinez
Dr Moreno-Martinez talks about living with Fabry disease and what it means to navigate a rare genetic condition at Fabry Matters Conference 2024.
Katrina's video - Fabry Awareness Month
Takeda have produced a film for Fabry awareness month this April highlighting what it is like to live with Fabry.
Simon's video - Fabry Awareness Month
In this video Simon discusses what life was like before he received a diagnosis and how it now affects him and his family.