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About MPS Society

The MPS Society provides support to families affected by rare genetic conditions. We raise money and awareness of these conditions through fundraising, information, research and support.

We help over 1750 people

We want all affected children and adults to know where to turn for specialist knowledge, support and advice and reach over 1,500 people per year.

Needs-led service

We are here to ensure we can offer support in a way it is most needed from a family with a newly diagnosed child through to adulthood and beyond.

World-class research

We focus on funding and collaborating on innovative, world-class research that can make a positive impact on those affected by these conditions.

Fastest possible diagnosis

We raise awareness of these conditions as we want all families to receive the fastest possible diagnosis so they can start receiving treatment and support as soon as possible.

Champion new treatments

We aim to champion new and existing therapies. There is no cure for MPS, Fabry and related diseases but with each new advancement in treatment, we help to ensure that lives are lived to the fullest.

Our future

We want to grow and invest in the future of the MPS Society to ensure our charity remains in the best position to support our members who are at the heart of everything we do.