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Transforming lives through support, research and awareness

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal conditions in the UK.


The MPS Society’s Support and Advocacy Team is at the core of everything the charity delivers.


Through medical research and clinical trials we help find innovative ways to cope with living with the conditions.


We invite you to celebrate our awareness events, share your stories and spread the word.

MPS Society events

Get support

When you or your child has been diagnosed with MPS, Fabry or a related lysosomal condition it can be a very worrying and isolating time.

Get support now

Donate today

We need to raise over £1 million each year in order to provide our vital services.

We know we couldn’t do this without our amazing network of supporters, members, corporate partners, trusts and foundations and more.

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The MPS Society takes its responsibilities in relation to data protection very seriously. Details on this form will be stored, recorded and shared in accordance with GDPR. Further information can be found in our data protection and privacy policy.

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