Newark
Thoresby Hall, Weekend of Remembrance
We are inviting those who have lost a loved one to MPS, Fabry or a related condition to join us in September for a weekend of remembrance.
Waiting list onlyWe are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal conditions in the UK.
The MPS Society’s Support and Advocacy Team is at the core of everything the charity delivers.
Through medical research and clinical trials we help find innovative ways to cope with living with the conditions.
We invite you to celebrate our awareness events, share your stories and spread the word.
When you or your child has been diagnosed with MPS, Fabry or a related lysosomal condition it can be a very worrying and isolating time.
July marks National Bereaved Parents Awareness Month and we would like to share a heartfelt thank you to Shauna and Steven who have supported the MPS Society with an extraordinary fundraising campaign in memory of their precious son Noah.