Throughout 2025, the MPS Society’s Fabry Education and Resilience Project brought together the UK Fabry community to share knowledge, ask questions and support one another.
The project created multiple opportunities for member engagement via our WhatsApp group, coffee mornings, webinars and Q&A sessions. It also offered a safe space to explore the practical and personal challenges of living with Fabry disease.
We collated and shared various resources, including medical papers, clinical trial updates, research summaries and guides specifically tailored to our members’ needs.
