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Work with us

The MPS Society provides support to families affected by one of 27 rare, life limiting genetic conditions. We want all affected children and adults to know where to turn for specialist knowledge, support and advice.

About us

The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS, Fabry and related diseases. These diseases are rare or ultra-rare and are both progressive and life limiting. Through our highly dedicated team we offer support throughout the UK that both informs and empowers the community we serve and that raises awareness of this disease group to a wider audience both nationally and internationally.

We offer flexibility in working hours, free on-site parking, 25 days (pro-rata) paid holiday per year and life insurance cover (subject to the conditions of the scheme)

Current vacancies

We currently have two open vacancies in the Support and Advocacy Team. Please see further details and the full job descriptions below. Applications should be made to HR@mpssociety.org.uk Please provide your CV and a covering letter explaining how your previous roles and experiences make you the candidate we are looking for.

Support and Advocacy Officer

As a Support and Advocacy Officer you will join a skilled team who collectively provide a unique UK-wide support and advocacy service to over 1,500 members. We welcome applications from those who have a minimum of two years’ experience of working with individuals with disabilities within health and social care, education, or related field. Experience of project management and service development would be an advantage.

Support and Advocacy Officer - Fabry

As a Support and Advocacy Officer you will join a skilled team who collectively provide a unique UK-wide support and advocacy service to over 1,500 members. You will primarily provide direct support and practical guidance to our Fabry members. This patient group is largely adult focused but there will be elements of family and child support. We welcome applications from those who have a minimum of two years’ experience of working with individuals with disabilities within health and social care, education, or related field. Experience of project management and service development would be an advantage.

Our privacy notice for job applicants

In accordance with the General Data Protection Regulation (GDPR), the MPS Society have implemented this privacy notice to inform you, as prospective employees of our Company, of the types of data we process about you. We also include within this notice the reasons for processing your data, the lawful basis that permits us to process it, how long we keep your data for and your rights regarding your data.

View our privacy notice.