International MPS Awareness Day on 15 May is an important date to highlight the rare and often unknown MPS conditions. Each year we celebrate for a week, raising awareness for these conditions and urging those affected to share their stories.
MPS Awareness Week
13-19 May 2024
This year we are focussing on raising awareness of the mental health need of our community. Living with a rare disease puts a massive strain on mental health, from waiting for a diagnosis to living with a life-limiting disease, it’s hard and a lot to deal with. That’s why we provide specialist support for our community through RareMinds, a charity we work closely with to provide a professional counselling service.
Wear it Blue
Raise awareness and fundraise at your school, community group or work place by organising a Wear it Blue event. To take part, simply share your plans with us and see our gallery below for some inspiration and all the fun there is to be had. Don’t feel blue, wear it blue!
Shout about it
Coming soon! Share our social media campaign highlighting the strain on mental health that a rare disease like MPS brings.
Thank you in advance for every pound you raise and every post you share!
Download our fun resources
Shining a light on the importance of individualised airway management plans
For Rare Disease Day, we shine the light on an important safety investigation report that involved insights from the MPS Society.
Sam just does "normal stuff"
We recently caught up with Sam to reflect on our first Adult Social Weekend in Manchester and covered even more important topics such as TV’s Taskmaster, Manchester United (his favourite football team), writing theatre plays and aerial acrobatics.