See all the latest news, blogs and updates from the medical sector.
Shaping the future | Rare Voices insights and new ways to get involved
We are excited to offer two exciting, new opportunities for members to actively engage in shaping our work. These are the Rare Voices Group and the MPS Ambassador Programme. Find out how you can get involved.
Research funding opportunities | MPS Matters 2025
Calling all professionals to take advantage of our funding opportunities for research at MPS Matters 2025 this June in form of a Dragon's Den session and poster presentations.
First prize for the rapid assessment of lysosomal enzyme activity in dried blood spots
CSAC member Simon Heales shares some background on a recent research project of the rapid assessment of lysosomal enzyme activity in dried blood spots which received a research grant from the MPS Society.
17th International Symposium on MPS and related diseases
We will be at the 17th International MPS Symposium this week and alongside the exciting programme on offer we will be participating in expert meetings on behalf of our community.
Shining a light on the importance of individualised airway management plans
For Rare Disease Day, we shine the light on an important safety investigation report that involved insights from the MPS Society.
Step into Spring is back!
Join us on Facebook where we are challenging you to complete 10,000 steps a day this March, and we will be walking right beside you. Register now!

Highlights from the team at WORLD 2024
Sophie, Bob and Fiona, part of Team MPS attending WORLDSymposium, shared their news and what they have been up to. With plenty of meetings and presentations to attend there are lots of opportunities to expand our knowledge of lysosomal diseases.
Together we can transform lives
Read our latest Fundraising Round Up and your inspirational stories that enable us to support over 1,750 people every year.
Together we can transform lives
Read the inspirational stories of some of our amazing fundraisers and be introduced to the first of our eight TCS London Marathon runners.
Together we can transform lives
Read all about our incredible fundraisers, from marathon runners to mountain climbers and learn how you too can get involved.