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Support we offer

The MPS Society’s Support and Advocacy Team is at the core of everything the charity delivers. It provides a unique, flexible and wide-ranging support service to its members from the point of diagnosis.

​The rarity of MPS, Fabry and related diseases means affected individuals and their families often experience difficulties accessing support services.

​Our experienced and skilled team works closely with individuals and their families as well as with health, social care and educational professionals to make sure the needs of our members always come first.

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How we can support you

From point of contact, we provide emotional support, practical advice, information and guidance as well as signposting where needed. Our specialist knowledge of the MPS, Fabry and related diseases and our social work experience means we can help in any stage of your journey.


When you are living with a rare disease, community can be hard to find. One of the core objectives of the MPS Society is to ensure that all of our members find their place.   

Mental health and wellbeing

Maintaining your mental health is a key aspect of living as well as possible with MPS, Fabry and related diseases. 

Bereavement and palliative care

We offer confidential support. Our qualified support and advocacy officers are here for you to offer a confidential supportive ear.