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Our impact

The MPS Society is the only UK charity that supports people affected by one of 27 rare diseases.

These diseases are cruel, genetic and life limiting. Our Support team offer a needs led service which is tailored to each individual or family. They bring support to families during times of crisis and are there for as long as they need.

We need to raise over £1 million each year in order to provide our vital services. We know we couldn’t do this without our amazing network of supporters, members, corporate partners, trusts and foundations and more.

MPS Society Impact

Our Advocacy and Support Service

We have provided a wide range of support, both practical and emotional.

1,100 members

supported through direct contact with our team

60 new members

joined MPS Society in 2022 to receive help and support

27 disease types

creating web pages, booklets and animations to help you understand complex conditions

300 in-depth cases

with Education, Health and Care plans, social care issues and continuing healthcare meetings.

Make a difference

We need to raise over £1 million each year in order to provide our vital services. We know we can’t do this without your help.

Donate now