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Our vision

Our vision: for all people affected by our diseases to live the lives they want.

Our mission: to transform lives through specialist knowledge, support and advocacy and research.

Our goals: we are working to ensure all our community have access to:

  • exceptional support and advice

  • world-class clinical care

  • effective treatments.

MPS Society Strategy 2023-2026

This strategy sees the focus of our support on mental health and wellbeing. We continue to put our members at the centre of everything we do but we now look to do this with a more proactive approach – rather than purely needs-led we hope to anticipate those needs and be ready with support.

We will continue to focus on early diagnosis, through newborn screening and other diagnostic tools that become available and aim to embed standards across the specialist centres that our members turn to. We will also work with stakeholders to make sure there is equitable access to effective treatments for our community.

To achieve this, we distilled our previous six goals into three clear and easy to understand goals, working to ensure all our community have access to: exceptional support and advice, world-class clinical care and effective treatments.