I wanted to approach the conference differently this time round. As we hadn’t had one for so long it was a good opportunity to reflect on what our community wanted and needed from a meet up.
I was able to think back to how nervous I felt attending for the first time as a dad of two boys with MPS II Hunter disease and to know that what I needed was to feel welcome. And boy did my team deliver. The feedback from those who attended was so positive. People felt welcome, people felt joy, people felt at home. Moreover, you could feel the camaraderie and buzz of a successful event.
Bob Stevens, Group CEO
This report highlights the impact made by the event and the results of the various data collection carried out.
