Your £6 Donation
£6 could pay for a newly diagnosed family to receive a disease-specific information booklet
Your £25 Donation
£25 could pay for a support and advocacy officer to present on MPS, Fabry and related diseases in a school so that students, teachers are informed on how best to support a child with a rare disease
Your £34 Donation
£34 could fund a support and advocacy officer for two hours so they can support a child and their family when they need someone to answer their questions and provide a listening ear
Your £85 Donation
£85 could pay for a Young Persons Advisory panel session, attended by young people affected by MPS, Fabry or a related disease, helping to shape the future of our dedicated young person support services
Your donation matters
We need to raise over £1 million each year in order to provide our vital services. We know we couldn’t do this without our amazing network of supporters, members, corporate partners, trusts and foundations and more.