MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
The Mental Capacity Act 2005 – “Best Interests”
This information applies to England and Wales only. What are Best Interests? The Mental Capacity Act 2005 Section 1 (5) introduces the...
Focus on Fabry webinar: Gene therapy updates
This webinar brought together clinical experts to answer your questions about gene therapy updates and how they may affect Fabry...
Mental Capacity Act 2005
The Court of Protection and becoming a deputy for a person who lacks the capacity to make decisions. When a person is deemed not to have...
Sensory sessions
Helen and Julie held a blue-themed messy play sensory session on 12 May in honour of MPS Awareness Week.
Top 10 tips for buying travel insurance when you have MPS, Fabry or a related disease
Finding the right travel insurance can be a challenge; making sure that you have covered all bases and taken all the unexpected...
Benefits Cap
The Benefits Cap is a limit placed on the number of benefits that can be claimed by people aged 16 to 64 years. Benefits that will be...
Carers Allowance
If you care for or look after someone who is disabled, you may be able to claim Carer’s Allowance. You do not have to be related to the...
Claiming free NHS dental treatment
The NHS provides free dental treatment for certain individuals depending on their circumstances, such as age, maternity, household income...
Mental health and wellbeing videos for adults - dealing with anxiety
A series of seven videos aimed to help you deal with anxiety, stress and worry. Diana Thornton is a counsellor and mindfulness teacher...
Mental health and wellbeing videos for adults - managing anxiety
The videos invite our members to manage their anxiety as well as techniques to build resilience. Diana Thornton, who runs the workshops,...
Impact Report 2019/20
As part of moving our resources online, we are starting to upload our back catalogue of magazines. We are starting with our Impact...
The COVID-19 vaccine and Inherited Metabolic Disease: what you need to know
An expert panel addresses questions and concerns relating to the vaccines for those with an IMD.
Fabry International Network Newsletter - December 2020
The latest newsletter from the Fabry International Network (FIN) is now available. A word from the President Dear All The last newsletter...
Latest information for clinically extremely vulnerable adults and children
Information and guidance for clinically extremely vulnerable adults and children
Fabry Findings - Issue No. 4 - Autumn 2020
Findings from research conducted with the Fabry community by Rare Disease Research Partners on behalf of the Fabry International Network.
Focus on Fabry: Fabry treatment update webinar
This webinar for Fabry patients and their families provides information about available interventional studies, who is eligible for them.
Take part in the highly important LSD Collaborative survey which closes soon
In this short clip Dr Tom Kenny, CEO of Rare Disease Research Partners (RDRP) urges you to take part in the highly important LSD...
Impact report 2019/20
In the latest edition of our new-look newsletter you can read about the impact our supporters have helped us to make in 2019.