See all the latest news, blogs and updates from the medical sector.
News
Conference 2021 Announcement
Dear friends, The COVID-19 pandemic has brought with it unprecedented challenges to the world we live in. For those affected by rare...
19/04/2021
News
National Lottery Community Fund award £195K to build connections and reduce feelings of isolation
Creating community, connection and peer-support for children, young people and families affected by MPS and related diseases. As we know,...
12/03/2021
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Inspirational author from Ireland
Geraldine, a determined MPS mother and writer, has published a book sharing her experience and insight into raising a child with a severe...
22/02/2021
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MPS Society welcomes new UK Rare Diseases Framework
MPS Society welcomes new UK Rare Diseases Framework, a national vision to improve the lives of those living with rare diseases.
22/01/2021
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Frequently asked questions about the vaccination programme for COVID-19
The BIMDG has prepared these responses to frequently asked questions about the vaccine progamme for COVID-19.
18/12/2020
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Kelly Mills' charity appeal for MPS Society on Radio 4
Thank you so much to everyone who donated to the Radio 4 appeal after hearing Kelly talk about her daughter, Penny, and her experience of...
04/11/2020
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Tune in to Kelly Mills' charity appeal for MPS Society on Radio 4 this month
Tune in to hear Kelly's appeal for MPS Society on Radio 4 this month.
09/09/2020
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Using UK Personal Child Health Records (Red Book) to investigate early indicators of MPS disorders
This study provides insights into early indicators of MPS disorders by using parent-held child health records of children based in the UK.
05/08/2020
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Ross Kemp's Living With Dementia series visits a family affected by Sanfilippo
Ross Kemp meets the Mills family to talk about 5-year-old Penny who has Sanfilippo.
31/07/2020
News
Online mindfulness course with Claire Garthwaite
Claire is running two online mindfulness courses that will follow an 8-week programme aimed at those affected by MPS and related diseases.
