See all the latest news, blogs and updates from the medical sector.
News
Inspirational author from Ireland
Geraldine, a determined MPS mother and writer, has published a book sharing her experience and insight into raising a child with a severe...
22/02/2021
News
MPS Society welcomes new UK Rare Diseases Framework
MPS Society welcomes new UK Rare Diseases Framework, a national vision to improve the lives of those living with rare diseases.
22/01/2021
News
Frequently asked questions about the vaccination programme for COVID-19
The BIMDG has prepared these responses to frequently asked questions about the vaccine progamme for COVID-19.
18/12/2020
News
Kelly Mills' charity appeal for MPS Society on Radio 4
Thank you so much to everyone who donated to the Radio 4 appeal after hearing Kelly talk about her daughter, Penny, and her experience of...
04/11/2020
News
Tune in to Kelly Mills' charity appeal for MPS Society on Radio 4 this month
Tune in to hear Kelly's appeal for MPS Society on Radio 4 this month.
09/09/2020
News
Using UK Personal Child Health Records (Red Book) to investigate early indicators of MPS disorders
This study provides insights into early indicators of MPS disorders by using parent-held child health records of children based in the UK.
05/08/2020
News
Ross Kemp's Living With Dementia series visits a family affected by Sanfilippo
Ross Kemp meets the Mills family to talk about 5-year-old Penny who has Sanfilippo.
31/07/2020
News
Online mindfulness course with Claire Garthwaite
Claire is running two online mindfulness courses that will follow an 8-week programme aimed at those affected by MPS and related diseases.
27/07/2020
News
Young adult webinars by Fabry International Network
FIN is very committed to training the next generation of patient advocates and also providing a platform for young adults.
23/07/2020
News
Paediatric advice on clinical support and homecare (updated 26 March)
Paediatric clinical advice on homecare and clinical support (currently under revision).
