See all the latest news, blogs and updates from the medical sector.
News
MPS Society’s Group CEO elected to the ABPI’s new Patient Advisory Council
We are thrilled to announce that our Group CEO, Bob Stevens, is one of the eight leaders from across the patient and health charity...
07/09/2021
News
Rareminds: MPS Society counselling launch
We are pleased to launch our new counselling service at the MPS Society for patients and family members.
07/09/2021
News
COVID-19 vaccination for children and young people aged 12-17 years
It is recognised that a small number of children and young people aged 12-17 years with specific underlying health conditions may be at...
30/07/2021
News
Willow Foundation Special Days and Treats
For people living with a life-threatening illness, every day is precious. The pressures of diagnosis, treatment and recovery can have a...
08/07/2021
News
APPG on Newborn screening
On 9 June 2021, we attended a virtual APPG (All Party Parliamentary Group) meeting on Rare, Genetic and Undiagnosed Conditions about...
29/06/2021
News
MPS Society's chance to win £1,000
MPS Society are asking for nominations to win a £1,000 Movement for Good award from Ecclesiastical Insurance Group. MPS Society is...
24/05/2021
News
Conference 2021 Announcement
Dear friends, The COVID-19 pandemic has brought with it unprecedented challenges to the world we live in. For those affected by rare...
19/04/2021
News
National Lottery Community Fund award £195K to build connections and reduce feelings of isolation
Creating community, connection and peer-support for children, young people and families affected by MPS and related diseases. As we know,...
12/03/2021
News
Inspirational author from Ireland
Geraldine, a determined MPS mother and writer, has published a book sharing her experience and insight into raising a child with a severe...
22/02/2021
News
MPS Society welcomes new UK Rare Diseases Framework
MPS Society welcomes new UK Rare Diseases Framework, a national vision to improve the lives of those living with rare diseases.
