See all the latest news, blogs and updates from the medical sector.
Sally and Marianne | Big Give Christmas Challenge 2025
Sally and Marianne run the MPS Society community events throughout the year. We caught up with them to discuss how activities are chosen and organised, why affordability matters, plans for 2026 and what makes our events so special.
Together we can transform lives
Great runs in London, Manchester and Scotland. Dancers, carnivals, birthday fundraisers with a sprinkling of Christmas in the air. Here's the latest fundraising round-up!
World Orphan Drug Congress Europe 2025
The World Orphan Drug Congress (WODC) is dedicated to advancing the development and delivery of treatments for rare diseases. It brings together industry leaders, researchers, policymakers, patient advocates and biotech innovators.
Supporting Siblings: How Sibs can help families affected by MPS
The MPS Society recognises how vital sibling support is. That’s why we want to spotlight Sibs - a charity offering free, practical resources for schools to help siblings feel seen and supported.
Together we can transform lives
Mountain climbs, golf marathons, a Tough Mudder and so much more! It is jam-packed! Get yourself a cuppa and enjoy the latest fundraising round-up!
Together we can transform lives
Peaks, marathons, pantomimes and charity football games all awash in a sea of blue! Yes, it can only be one thing, it's time for your latest fundraising blog!
Representing you
Our Patient Services team has had another eventful month, working tirelessly across the UK to support families, provide education for professionals and advocate for our community at every level.
Representing you
What a busy month May has been! The MPS Society team continues to champion your voice across a range of national conversations, collaborations and awareness initiatives.
It's about time
This MPS Awareness Day we joined the IMPSN campaign in sharing the message It’s About Time which aims to raise awareness of MPS and the things our community need now. So, what is it about time for?
Wellbeing Wednesday
We know that living with a rare condition is tough. Some days are good, but some days aren’t! Our goal is to equip you with a ‘bag of tricks’ that you can pick and choose from when you need an extra pick-me-up.