See all the latest news, blogs and updates from the medical sector.
Blog
Wellbeing Wednesday
We know that living with a rare condition is tough. Some days are good, but some days aren’t! Our goal is to equip you with a ‘bag of tricks’ that you can pick and choose from when you need an extra pick-me-up.
18/02/2025
News
Research funding opportunities | MPS Matters 2025
Calling all professionals to take advantage of our funding opportunities for research at MPS Matters 2025 this June in form of a Dragon's Den session and poster presentations.
28/01/2025
Blog
CSAC Update | January 2025
Dr Fiona Stewart looks back at a busy second half of 2024 and recalls how CSAC was able to support important future research and make meaningful connections.
24/01/2025
Blog
Conference highlights | The Big Give Christmas Challenge 2024
Some of our 2019 conference attendees explain why this is such an important event. You can help contribute to events like these by donating in the Big Give Christmas Challenge.
26/11/2024
Story
Strategically undervalued
Watch Gracie's powerful documentary on disability empowerment, raising awareness of her ultra-rare condition MPS IVA.
21/11/2024
Blog
Representing you
Each month your MPS Society Team represents you on a variety of different forums both nationally and internationally. Read what Bob, Sophie and Steve have been up to in November.
21/11/2024
Blog
Together we can transform lives
Discos, ice-cream, and birdies! Yes, it's the latest fundraising round-up. Find out what our amazing fundraisers have been doing.
21/11/2024
Blog
Sally | The Big Give Christmas Challenge 2024
Sally, Senior Support and Advocacy Officer at the MPS Society, reflects on the significance and impact of our community events for families living a rare life.
19/11/2024
Story
Kayden's story | MPS III Sanfilippo Awareness Day 2024
On MPS III Awareness Day we are sharing Kayden's story who was diagnosed with the condition aged two after becoming very unwell. His mum Rachel gives an insight into life with MPS III and explains how the family are adapting to Kayden's needs.
16/11/2024
Story
Ria's story | The Big Give Christmas Challenge 2024
Attending the annual Weekend of Hope and Remembrance has been a great source of comfort and support to Ria. Her story highlights the importance of being able to step out of everyday life, reflect and share memories with people who can relate.
