See all the latest news, blogs and updates from the medical sector.
News
FDA places temporary clinical hold on two MPS gene therapy trials
The MPS Society is aware of an announcement from REGENXBIO regarding its investigational gene therapy programs RGX-111 for MPS I Hurler syndrome) and RGX-121 for MPS II (Hunter syndrome).
29/01/2026
Blog
This is our London Marathon #teamMPS
Meet our amazing team of runners who are currently training hard to take on the ultimate challenge, the 2026 TCS London Marathon.
21/01/2026
News
Raising awareness for childhood dementia event
We need to act now. Read a summary of the key messages from the Childhood Dementia Scotland event in December 2025.
09/01/2026
News
UK NSC does not recommend screening for MLD
We are deeply disappointed by the UK NSC’s decision not to add MLD to the newborn screening panel and we will not stop fighting for newborn screening for MLD.
08/01/2026
Blog
CSAC in 2025
CSAC is the MPS Society's Clinical Scientific Advisory Committee. Its chair Fiona Stewart looks back at an eventful year and talks about the exciting research projects the committee was able to support.
18/12/2025
Blog
Building a fitness brand: the motivation and challenges behind SabreFit
Sam, founder of SabreFit explains the inspiration behind his fitness clothing line and why he is donating his profits to the MPS Society this Christmas.
11/12/2025
Blog
Why I’m fundraising for the MPS Society
Lianne has chosen the MPS Society as her charity for the year and is currently in the middle of a monthly schedule of challenging fundraising activities. She reflects on her achievements so far and why fundraising is so important to her.
01/12/2025
News
Little Bus Big Ride
To celebrate their family business turning 100 years old, three brothers from Nantwich, Cheshire decided to embark on the adventure of a lifetime.
01/12/2025
Blog
Paddington wears it blue
For over 20 years, Snugburys have been building amazing straw sculptures in support of charity. In 2024, a giant 45ft straw Paddington Bear appeared in their field to raise awareness for the MPS Society.
01/12/2025
News
New hope for children with devastating rare genetic disorder, thanks to world-first research in Manchester
The parents of a three-year-old boy born with a devastating, life-limiting genetic condition say they are now excited for his future after he received a revolutionary stem cell gene therapy treatment.
