See all the latest news, blogs and updates from the medical sector.
Story
Archie in Paris
In January, MPS Society member Archie travelled to Paris to share his story at the BioMarin Conference. Read about his trip and how well the interview was received.
19/02/2026
Blog
Together we can transform lives
A Christmas fayre, carol concert, Santa fun run and the Big Give, it can only be the latest fundraising round-up!
19/02/2026
Blog
Key presentation insights from WORLDSymposium 2026
Our teams from the MPS Society and RDRP were delighted to attend WORLDSymposium 2026 in San Diego. Catch up on the presentation highlights.
13/02/2026
News
Bob Stevens receives prestigious PAL Award
At the 2026 WORLDSymposium, Group CEO Bob Stevens was honoured with the PAL Award. In his speech, he emphasized the importance of standing together as a global community and that this work must always be about people not profit or politics.
05/02/2026
News
FDA places temporary clinical hold on two MPS gene therapy trials
The MPS Society is aware of an announcement from REGENXBIO regarding its investigational gene therapy programs RGX-111 for MPS I Hurler syndrome) and RGX-121 for MPS II (Hunter syndrome).
29/01/2026
Blog
This is our London Marathon #teamMPS
Meet our amazing team of runners who are currently training hard to take on the ultimate challenge, the 2026 TCS London Marathon.
21/01/2026
News
Raising awareness for childhood dementia event
We need to act now. Read a summary of the key messages from the Childhood Dementia Scotland event in December 2025.
09/01/2026
News
UK NSC does not recommend screening for MLD
We are deeply disappointed by the UK NSC’s decision not to add MLD to the newborn screening panel and we will not stop fighting for newborn screening for MLD.
08/01/2026
Blog
CSAC in 2025
CSAC is the MPS Society's Clinical Scientific Advisory Committee. Its chair Fiona Stewart looks back at an eventful year and talks about the exciting research projects the committee was able to support.
18/12/2025
Blog
Building a fitness brand: the motivation and challenges behind SabreFit
Sam, founder of SabreFit explains the inspiration behind his fitness clothing line and why he is donating his profits to the MPS Society this Christmas.
