See all the latest news, blogs and updates from the medical sector.
Blog
Representing you
It's been another busy month in which the MPS Society team actively represented you and educated professionals across the UK. Read more about our contributions to the MLD Conference, LINK Meeting, Family Screening Project and more.
Blog
A partnership for patients at WORLDSymposium 2025
Our teams from MPS Society UK and RDRP are sharing their experience of attending WORLDSymposium in San Diego this February. Read more about the connections they have made and the key takeaways from the event.
News
Shaping the future | Rare Voices insights and new ways to get involved
We are excited to offer two exciting, new opportunities for members to actively engage in shaping our work. These are the Rare Voices Group and the MPS Ambassador Programme. Find out how you can get involved.
Story
BBC Children in Need’s Greatest Showman
If you followed last year’s BBC Children in Need programme, you simply couldn’t have missed Ethan who joined the One Show’s CIN Challenge Squad and starred as The Greatest Showman in the live show. Hear all about his incredible experience.
Blog
Together we can transform lives
Music, quizzes, dancing, boxing, as well as football bucket collections! Yes, it is our fundraising round up!
Blog
Wellbeing Wednesday
We know that living with a rare condition is tough. Some days are good, but some days aren’t! Our goal is to equip you with a ‘bag of tricks’ that you can pick and choose from when you need an extra pick-me-up.
News
Research funding opportunities | MPS Matters 2025
Calling all professionals to take advantage of our funding opportunities for research at MPS Matters 2025 this June in form of a Dragon's Den session and poster presentations.
Blog
CSAC Update | January 2025
Dr Fiona Stewart looks back at a busy second half of 2024 and recalls how CSAC was able to support important future research and make meaningful connections.
Blog
Conference highlights | The Big Give Christmas Challenge 2024
Some of our 2019 conference attendees explain why this is such an important event. You can help contribute to events like these by donating in the Big Give Christmas Challenge.
Story
Strategically undervalued
Watch Gracie's powerful documentary on disability empowerment, raising awareness of her ultra-rare condition MPS IVA.
Blog
Representing you
Each month your MPS Society Team represents you on a variety of different forums both nationally and internationally. Read what Bob, Sophie and Steve have been up to in November.
Blog
Together we can transform lives
Discos, ice-cream, and birdies! Yes, it's the latest fundraising round-up. Find out what our amazing fundraisers have been doing.