See all the latest news, blogs and updates from the medical sector.
Blog
Together we can transform lives
Discos, ice-cream, and birdies! Yes, it's the latest fundraising round-up. Find out what our amazing fundraisers have been doing.
21/11/2024
Story
Strategically undervalued
Watch Gracie's powerful documentary on disability empowerment, raising awareness of her ultra-rare condition MPS IVA.
21/11/2024
Blog
Representing you
Each month your MPS Society Team represents you on a variety of different forums both nationally and internationally. Read what Bob, Sophie and Steve have been up to in November.
21/11/2024
Blog
Sally | The Big Give Christmas Challenge 2024
Sally, Senior Support and Advocacy Officer at the MPS Society, reflects on the significance and impact of our community events for families living a rare life.
19/11/2024
Story
Kayden's story | MPS III Sanfilippo Awareness Day 2024
On MPS III Awareness Day we are sharing Kayden's story who was diagnosed with the condition aged two after becoming very unwell. His mum Rachel gives an insight into life with MPS III and explains how the family are adapting to Kayden's needs.
16/11/2024
Story
Ria's story | The Big Give Christmas Challenge 2024
Attending the annual Weekend of Hope and Remembrance has been a great source of comfort and support to Ria. Her story highlights the importance of being able to step out of everyday life to reflect and share memories with people who can relate and offer solace.
12/11/2024
Story
Nadine's story | The Big Give Christmas Challenge 2024
Nadine explains the importance of getting together and creating memories as a whole family. It’s not just the child with a condition who needs special events, siblings and parents need time to be together in an understanding environment as well.
05/11/2024
Story
Archie puts boccia on the map
Have you ever heard of boccia? There is no one better to tell you all about the sport than our member Archie. He shares his infectious passion for boccia and his journey from player to coach.
31/10/2024
Blog
Wellbeing Wednesday
We know that living with a rare condition is tough. Some days are good, but some days aren’t! Our goal is to equip you with a ‘bag of tricks’ that you can pick and choose from when you need an extra pick-me-up.
24/10/2024
Blog
Representing you
We recognise that when it comes to supporting our members we can do so much more through collaboration. Each month we represent you on a variety of different forums and here’s what we’ve been up to in October.
