We have had one of our biggest and best MPS Awareness Weeks ever! So many schools, community groups and individuals took on challenges for their loved ones and people affected by rare and complex conditions. We have seen a sea of blue as we challenged everyone to spread awareness far and wide and you have not disappointed. Let's catch up with these amazing fundraising stories.
National 3 Peaks for Tilly
The amazing Thistleton family raised funds in honour of Tilly their daughter who has an MPS condition. Stuart, Tilly's Dad, along with a group of family and friends took on the National Three Peaks challenge raising an epic £6,680! A big thank you to Kingswood Park Primary School who created the MPS letters out of all the pupils, how brilliant! They held a Wear it Blue Day and raised £628 putting the total up to over £7,000!
The family have even been featured in their local newspaper and on the BBC. Thank you so much to the whole family for your incredible fundraising and for raising vital awareness for us, you are truly amazing!
Wear it Blue for Ethan
A massive thank you to St Stephen's and Broadstairs Golf Society and The Lockdowners for teeing-off in style for their annual Wear Blue for Ethan Golf tournament. They raised an amazing £4,780 for the MPS Society! It looked like a fun packed day and Ethan looked like he was in his element. We appreciate your support every year and cannot wait to have you back next year. THANK YOU!
Nantwich Young Farmers
A very heartfelt MPS thank you goes to Nantwich Young Farmers Club who raised an enormous £11,220 by putting on their annual pantomime. This year’s production was Alice in Wonderland and the proceeds have been split between us and one other amazing charity.
Nantwich YFC said:
This family has long been a cherished part of the Cheshire Young Farmers community, particularly in Nantwich. Their strength and resilience has been an inspiration to us all. We wanted you to know that we stand with them as they navigate this unknown journey with Freddie. Thank you so much to everyone who was involved and who donated!
A big thank you to:
Dean Fyfe who completed the Edinburgh marathon in memory of his sister in law Katie raising £2,685
Natalie and Stu Murray who climbed the Yorkshire 3 Peaks for their nephew raising £1,968
Jess and Elliot who climbed Snowdon in memory of Alex raising £565
Rhys McKee and the STLTH team who ran the Belfast marathon raising £622.50
Nick Natrella who ran the Pampona half marathon raising £468
George Bastow who ran the Rob Burrows marathon for his cousin raising £1,200
Kirsty Bennett who battled her way through the Blenheim Palace Triathlon raising £522
Richard Cooling, family and friends annual football match for Jonathan raising a fabulous £2,443
Gabrielle Faye Chan who raised £245 running the AJ Bell Manchester Half Marathon
MPS Awareness Week 2025 total
Drum roll, please ... ! This year's MPS Awareness Week campaign has raised over £25,000!!!!! Thank you to all the schools, community groups and individuals who organised events throughout the week and made this total possible. It is because of you that we are able to support families and individuals affected by MPS, Fabry and related conditions throughout the year. We thoroughly enjoyed seeing all your pictures from your wear it blue events, bakes sales and awareness activities. Thank you so much!
