See all the latest news, blogs and updates from the medical sector.
News
Tune in to Kelly Mills' charity appeal for MPS Society on Radio 4 this month
Tune in to hear Kelly's appeal for MPS Society on Radio 4 this month.
09/09/2020
News
Using UK Personal Child Health Records (Red Book) to investigate early indicators of MPS disorders
This study provides insights into early indicators of MPS disorders by using parent-held child health records of children based in the UK.
05/08/2020
News
Ross Kemp's Living With Dementia series visits a family affected by Sanfilippo
Ross Kemp meets the Mills family to talk about 5-year-old Penny who has Sanfilippo.
31/07/2020
News
Online mindfulness course with Claire Garthwaite
Claire is running two online mindfulness courses that will follow an 8-week programme aimed at those affected by MPS and related diseases.
27/07/2020
News
Young adult webinars by Fabry International Network
FIN is very committed to training the next generation of patient advocates and also providing a platform for young adults.
23/07/2020
News
Paediatric advice on clinical support and homecare (updated 26 March)
Paediatric clinical advice on homecare and clinical support (currently under revision).
24/03/2020
News
Key points from coronavirus webinar hosted by The Worldwide Hospice Palliative Care Alliance
WHPCA webinar on coronavirus and people with serious conditions and underlying health issues
23/03/2020
News
Changes to our service as a result of COVID-19
Due to the changing situation with the COVID-19 outbreak the MPS Society (including RDRP) has taken the decision to close our offices and...
16/03/2020
News
MPS Society response to Budget announcement
Following Rishi Sunak's Budget speech, the chief executive of MPS Society has released a statement concerning funding for rare diseases.
