See all the latest news, blogs and updates from the medical sector.
News
Young adult webinars by Fabry International Network
FIN is very committed to training the next generation of patient advocates and also providing a platform for young adults.
23/07/2020
News
Paediatric advice on clinical support and homecare (updated 26 March)
Paediatric clinical advice on homecare and clinical support (currently under revision).
24/03/2020
News
Key points from coronavirus webinar hosted by The Worldwide Hospice Palliative Care Alliance
WHPCA webinar on coronavirus and people with serious conditions and underlying health issues
23/03/2020
News
Changes to our service as a result of COVID-19
Due to the changing situation with the COVID-19 outbreak the MPS Society (including RDRP) has taken the decision to close our offices and...
16/03/2020
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MPS Society response to Budget announcement
Following Rishi Sunak's Budget speech, the chief executive of MPS Society has released a statement concerning funding for rare diseases.
11/03/2020
News
Neglected diseases - letter to The Times
Heads of more than 35 charities have written to The Times to ask NICE that rare diseases get fair and equal access to treatment.
