The International MPS Symposium, which this year will be held in Würzburg, Germany, is a platform where doctors, patients, families, scientists and industry professionals come together to discuss MPS and related lysosomal diseases. It includes scientific lectures, a wide range of activities for families, a lively children's and youth program including childcare services, special workshops, first-class networking dinners, touching exchanges and much more!
This year, Bob and Sophie will be attending to represent our community here in the UK. Whilst there they will be meeting with experts to further two areas of the work we have committed to in 2024.
MPS Airways Project (MAP) meeting – Focus on MPS II and MPS IVA
Hosted by MPS Society, experts from around the world will meet to share and improve knowledge of airways in MPS patients outside of specialist centres. Our aim is to achieve three outcomes:
Start to map out international consensus guidelines for the management of airways in MPS II and MPS IVA
Develop an emergency airway management plan that patients and their families can use to describe their airways complications to health care providers.
Gather experiences and to look at what needs to be documented to aid understanding of airway challenges in MPS diseases.
Doing clinical trials better
Our team will also meet to discuss a new regulatory initiative that will bring together some of the best clinical minds to look at sustainable ways to conduct trials, focussing on surrogate biomarkers and emphasising the needs and benefits for the patient.
We have organised these meetings in response to the changing needs of our community and are incredibly grateful to our clinical colleagues who are attending and sharing their expertise.
Find out more about the 17th International Symposium on MPS and Related Diseases which runs from 4 to 7 April 2024.
