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Together we can transform lives


Over the last weeks you have been dancing, crunching your abs an incredible 1,800 times, auctioning, running and so much more, all to raise vital funds to enable us to support people and families living with MPS, Fabry or related diseases. You are all superstars and we cannot thank you enough! Enjoy reading your stories below.

Autumn Ball

A huge thank you to Katy and Simon Brown for arranging a fabulous MPS Autumn Ball this month to raise awareness and funds for us. Thank you to everyone who attended, bought, bid, donated, sang and danced the night away. Together you raised £13,208.06. What a result! You are all amazing. Here are some fab photos from the event.

Facebook challenge

60 Sit Ups A Day In September

We would like to send a massive thank you to everyone who took part in 60 Sit Ups A Day In September! Please pat yourselves on your newly toned abs as you managed 1,800 sit ups during the month of September. This is quite the achievement and you’ve helped to raise over £1,000 and counting… We are so proud of you all!


We would also like to send our heartfelt thanks to:

  • Judith Patton who completed the Great Scottish Run and Ards Allotment for holding an Open Day. These events raised £900.

  • The residents of Woodland Glade who held another successful Race Night and raised £800 in memory of Jake.

  • Friends and family of the Goodwin family who continue to support us tirelessly including Nantwich Young Farmers who held a charity pantomime and auction and raised £5,344 and the Cliffes who celebrated a special anniversary and raised £2,700.

Meet our 2024 TCS London Marathon Runner Team

Let us introduce you to our fabulous team for the 2024 TCS London Marathon! They are already busy training for the big day and we thought, we would share a little more information about each of them with you over the next few months.

Our second runner is Kevin…

“Hi, I’m Kevin. This will be my 35th London Marathon and my third for the MPS Society!! I’ve raised about £120,000 for charity over the years and about £10,000 for the MPS Society and my little friend Harvey who has MPS. Hopefully I can raise more than the £4,000 I raised last time! This is a photo of me with Harvey."

If you would like to support Kevin, visit his Just Giving page.

Thank you to everyone who has donated to the MPS Society this month, your support means the world to us!

Thanks to your efforts, an amount like this could help us to assist more than 120 families a year with tailored support, advocacy and information.

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