See all the latest news, blogs and updates from the medical sector.
Blog
Today is World Sanfilippo Awareness Day
MPS III, known as Sanfilippo disease, is one of the mucopolysaccharide storage diseases.From 2010 to 2020, 83 babies were born with MPS III in the UK.
16/11/2023
Blog
Emma's story | The Big Give Christmas Challenge 2023
Hello, everyone! I am Emma, mum to my wonderful daughter Isabella. Isabella has MPS I Hurler and we have been members of the MPS Society since 2016.
14/11/2023
Blog
Angela's story | The Big Give Christmas Challenge 2023
Angela's story shines a light on the lasting friendships and strong support networks created through finding a place of acceptance and empathy.
06/11/2023
Blog
Bob's rare disease road trip
Bob has been very busy over the last few weeks, as he travelled across the world to continue the all important conversation on rare diseases
23/08/2023
Blog
Going on holiday in an MPS world
Living with MPS, Fabry or related condition can make going on holiday a daunting prospect. I am here to tell you that it's possible.
01/08/2023
Blog
Thank you Katie and Churchill Park Academy
We would like to say a big thank you to Katie Mackelden who, along with Churchill Park Academy, raised £737.00 during MPS Awareness Week....
04/07/2023
Blog
Navigating the NHS by Claire
I may seem a little obsessed, maybe I am, but when you are fighting for your life, for your health, you’ll leave no stone unturned.
29/03/2023
Blog
They had an absolute ball
It was dancing shoes at the ready for the Winter Ball, hosted by the Scott family, on 3rd February, all in honour of their daughter...
23/03/2023
Blog
We hear from Judith Evans
All good things come to an end…so the saying goes…..and earlier this year James Garthwaite told the Board that he wished to stand down...
16/12/2022
Blog
My good friend, Christine
Wilma, trustee of the MPS Society, mother to an MPS child and great friend to Christine, shares her memories of a special woman. I was...
