We have so much to report from the world of fundraising, it will be hard to fit it all in! Our fundraising community have been smashing it out of the park with taking on running challenges, climbing mountains, selling sunflowers and sending smiles around the world. Let's take a look at what all our fabulous fundraisers have been up to.
Henry's smile
A huge MPS Society thank you to Sophie, James, and Henry, family and friends for continuing to send Henry's Smile around the world and smashing your £5,000 target reaching an epic £6,872 to date! For those of you who don't know, these are badges that can be bought for a small donation. The family has been asking people to take photos with them and post on social media. To find out more, head to their fundraising page.
Sophie has said:
We still have funds due to go in very soon. We did a big sponsored walk at the weekend which was a great success. We are not stopping here! We will keep adding as much as we can. I still have buckets to collect from my mum’s salon, my partners gym, funds from the sponsored walk.
Thank you so much to you all for spreading vital funds and awareness for the MPS Society in honour of Henry. We are so inspired by your sheer grit and determination. Good luck for the next part of this incredible crusade!
Inner Wheel Club of Clevedon
A huge thank you to the Inner Wheel Club of Clevedon for having us as your charity of the year and donating £2,500 for families and individuals affected by MPS, Fabry, and related conditions. A special thanks goes to Sheena Bagnall grandmother of Ada and Eliza, who kindly received the cheque for us last week. Ada has an MPS condition, and is supported by our advocacy team. Sadly, the Inner Wheel is closing this year so we wish you all the best of luck in the future and thank you for being such a great support to us over the years.
24-hour Golf Marathon for Luke
Thank you so much to Mark, Jamie, Dean and William for holding a golf marathon in memory of Luke, Mark's nephew, who had an MPS condition. After reassuring the police they were in fact allowed to be on the course, the local bobbies got involved and even helped tee-off, as well as enjoying a ride on the golf buggy!
This amazing group of golfers raised a magnificent £1,776! This means they will be helping over 8 families and individuals for a year receive support and care. Mark said:
I have lost a nephew to the condition and the support received we cannot thank you enough for, so I wanted to do something to say thank you.
Thank you so much to you all for taking on this challenge, creating bespoke t-shirts, and raising vital funds and awareness for the MPS Society. We are so grateful for all your time and effort.
The Foregate Garage Snowdon Challenge
Congratulations to the Foregate Garage team who took on Snowdon in honour of Archie who has an MPS condition. They have raised an amazing £1,839 through their Just Giving page and cash sponsorship's. Thank you so much from everyone at the MPS Society for raising vital funds and awareness, we appreciate all your efforts!
A big thank you to:
Snugburys Ice Cream for selling their beautiful sunflowers and donating the proceeds to the MPS Society raising an incredible £2,434.58 to date
Leah Ogbechi for creating her wonderful MPS Society bracelets and letting us sell them at the conference. Her contribution along with our tombola and merchandise sales helped raise over £650
Ollie Poole and his friend Ted who took on Tough Mudder in honour of Ollie's cousin Richard who has an MPS condition raising £1,520
Stephen McCaWille who raised £742 hiking up Mount Fuji in memory of his brother Shaun
Maurice Patton who held an open day at the local allotments and raised £565
The Working Bearded Collie Society for raising £89
The Staffordshire and Birmingham Agricultural Society for raising £689
Sylvia Arter and her walking group for raising £150
Iris Hitter for raising £504 at 'Jacqueline’s Day'
Helen Parker for taking park on the Manchester 10K and for holding a bake sale at her singing group Singspace, raising £215
Great North Run 2025
A huge thank you to Emily, Dale, Damian, Craig, Jamie and Stuart for competing in the Great North Run raising a staggering £3,563. We are so grateful to each of them for all their time and effort, this will go such a long way in helping to support all our members with rare and complex conditions. Thank you so much!
Mini Avengers 2025
Thank you so much to all our Mini Avengers who took part in our summer challenge! You raised an epic £1,031 doing a mile a day your way and we still have money coming in!! A special thanks to Jacob, Cora, Ida, Annie, Ruby and Jessica who helped to raise vital funds and awareness for our families and individuals affected by MPS, Fabry and related conditions. We hope you all had fun doing this and thank you for being such amazing Mini Avengers!
Awareness Week update
We are pleased to say that thanks to all the amazing schools, colleges, nurseries and community groups we raised over £29,000!! This is such an incredible amount of money and we could not have done it without all of you. Thank you for all you support and effort in helping to reach this total. We really hope to have you all back again next year. Thank you!!
Big Blue Bake-Off
With bake-off back we are calling all bakers and fundraisers alike to dust off their aprons and get baking this September to help support families and individuals with rare and complex conditions! Whether you set up a stand at your school, place of work or local market or even hold a coffee morning every bake sale makes a difference! If you would like to get your bake on here is our wonderful Big Blue Bake Off pack to get your teeth into!
