See all the latest news, blogs and updates from the medical sector.
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Ayla's story | MPS Awareness Week 2026
This MPS Awareness Week, we hear Ayla’s story. Diagnosed with MPS I Hurler at the age of four, Ayla is at the heart of a close‑knit and outgoing family unit.
13/05/2026
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From hospital ward to centre stage: Sam’s Story inspires new play
We caught up with Sam in March and watched him in a play written by his mum and inspired by his time on a children’s ward.
24/04/2026
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Archie in Paris
In January, MPS Society member Archie travelled to Paris to share his story at the BioMarin Conference. Read about his trip and how well the interview was received.
19/02/2026
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Mel's story | Big Give Christmas Challenge 2025
Mel explains why the Independent Adult Weekend and meeting others face to face is so important, especially since she's transitioned to adult services.
18/11/2025
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Allison's story | Big Give Christmas Challenge 2025
For Allison, the annual Weekend of Remembrance and Hope each September is a profound source of comfort and connection. The weekend offers families a safe and supportive space to honour their loved ones alongside others who truly understand.
11/11/2025
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Emily's story | Big Give Christmas Challenge 2025
Emily shares why community events mean so much to our families, from feeling accepted and understood to enjoying a day out away from the everyday challenges and creating new friendships.
04/11/2025
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Starting treatment
Dave has recorded an insightful video to offer an insight into his first ever Fabrazyme infusion.
18/09/2025
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Don't give up on life when it gets tricky
Read about Olivia's remarkable journey from diagnosis, the challenging pursuit of treatment to fulfilling her ambition of becoming a teacher.
18/09/2025
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Scarlett's Active April challenge
We caught up with Scarlett who has been doing some amazing fundraising on behalf of her friend Luna.
21/08/2025
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Chat with Liz for International Fabry Women's Day
The first Saturday in April is International Fabry Women's Day and we had a lovely chat with Liz who has had a very recent diagnosis with Fabry.
