See all the latest news, blogs and updates from the medical sector.
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My daughter Eva
For Leukodystrophy Awareness Month we hear from Catrin, whose daughter has Metachromatic Leukodystrophy (MLD). My daughter Eva Rae...
18/09/2023
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My son Joey
For Leukodystrophy Awareness Month we hear from Katie, whose son has Metachromatic Leukodystrophy (MLD). Joey was born a happy healthy...
11/09/2023
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Robert's story - A father's love
During MPS Awareness Week this year we heard from Robert and how he chased a diagnosis for his son Nathan. In the second installment of...
18/06/2023
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Robert's story - MPS Awareness Week 2023
For MPS Awareness Week, we are looking at chasing the signs of MPS and raising awareness of the disease. Read Nathan's story.
15/05/2023
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Living with Fabry
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease.
29/03/2023
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My personal journey of living rare by Claire
32, young, fun, living life and boom hit by what I can only describe as a tidal wave of fatigue and body pain that came from nowhere.
29/03/2023
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Patricia's personal experience of coping with grief
Patricia shares her story in National Grief Awareness Week of losing her beloved daughter, Helen, who died in 2016.
02/12/2022
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December Fundraiser of the Month - The Brown family
This month's fundraiser of the month is the Brown family. Mum, Vikki shares their story.
30/11/2022
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Tom's story - The Big Give Christmas Challenge 2022
"Getting the emotional and practical support from the MPS Society makes me feel less alone. It’s just good to know they are always there”
28/11/2022
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Kim's story - The Big Give Christmas Challenge 2022
Kim Coney, is mum to Tom (26) who has MPS VI (Maroteaux-Lamy), a mucopolysaccharide disease where a build-up of sugar molecules in the...
