See all the latest news, blogs and updates from the medical sector.
Blog
It's about time
This MPS Awareness Day we joined the IMPSN campaign in sharing the message It’s About Time which aims to raise awareness of MPS and the things our community need now. So, what is it about time for?
29/05/2025
News
Fabry International Network (FIN) meeting 2025
This year’s meeting in Lisbon marked the 20th anniversary of the Fabry International Network (FIN), a time to reflect on two decades of collaboration and progress.
29/05/2025
News
MPS Awareness Day event a success
We held an event on MPS Awareness Day to say thank you to our supporters and volunteers for their contribution to the charity's work.
29/05/2025
Blog
Wellbeing Wednesday
We know that living with a rare condition is tough. Some days are good, but some days aren’t! Our goal is to equip you with a ‘bag of tricks’ that you can pick and choose from when you need an extra pick-me-up.
27/05/2025
Blog
Together we can transform lives
Running, stepping, awareness days and talks, as well as more pub quizzes! Sit back and enjoy our latest edition of our fundraising blog!
23/04/2025
Blog
Representing you
Our community is at the heart of everything we do. Making your voices heard is a key priority for us, and this month has been no exception. Read on to find out which meetings and conferences we attended to represent you.
17/04/2025
Story
Chat with Liz for International Fabry Women's Day
The first Saturday in April is International Fabry Women's Day and we had a lovely chat with Liz who has had a very recent diagnosis with Fabry.
05/04/2025
Blog
Representing you
It's been another busy month in which the MPS Society team actively represented you and educated professionals across the UK. Read more about our contributions to the MLD Conference, LINK Meeting, Family Screening Project and more.
25/03/2025
Blog
A partnership for patients at WORLDSymposium 2025
Our teams from MPS Society UK and RDRP are sharing their experience of attending WORLDSymposium in San Diego this February. Read more about the connections they have made and the key takeaways from the event.
25/02/2025
Story
BBC Children in Need’s Greatest Showman
If you followed last year’s BBC Children in Need programme, you simply couldn’t have missed Ethan who joined the One Show’s CIN Challenge Squad and starred as The Greatest Showman in the live show. Hear all about his incredible experience.
