Meet our amazing team of runners who are currently training hard to take on the ultimate challenge, the 2026 TCS London Marathon. On Sunday 26 April they will be giving everything to support our vital work for people and families living with MPS, Fabry and related conditions, inspired by deeply personal reasons.
Hugo
The MPS Society has supported us as a family for more than 20 years.
My dad and sisters have Fabry disease. The MPS Society has supported us as a family for more than 20 years with information and the latest developments in treatments. My dad took part in clinical trials when first diagnosed and we have been fortunate to see the treatments evolve from overnight hospital infusions to home infusions and, most recently, a daily pill. I am running with the aim to raise awareness for all the great work this charity does as well as trying to fundraise as much as I can.
Laura
He’s a little legend living with MPS II Hunter which we had never heard of until his diagnosis.
I’m running for my friends’ little boy Henry. He is a little legend living with MPS II Hunter which we had never heard of until his diagnosis. I’m raising money to help spread awareness and want to raise as much money as I can so that the MPS Society can keep supporting children like Henry and all their families.
Sam
She is the bravest little girl I know.
I’m running in support of the MPS Society because the cause is deeply personal to me. My amazing daughter Ayla was diagnosed with MPS I Hurler in January 2024 and underwent a stem cell transplant along with multiple other treatments. We’re currently at around 19 months’ post-transplant and she is smashing every hurdle that’s thrown at her. She is the bravest little girl I know and I absolutely idolise her. The MPS Society has been an incredible source of support for families like ours, funding vital research and providing help when it’s needed most. I’m running to raise awareness, give back and help make a difference.
Michael
I’m hopeful my fundraising can go some way to help other children like Wilfred and their families.
I am running the 2026 London Marathon in memory of my friend’s son Wilfred. Wilfred had MPS II Hunter and my aim in running the marathon is to shine a light on this little-known condition that desperately needs a cure. By supporting the MPS Society, I’m hopeful my fundraising can go some way to help other children like Wilfred and their families. I’ve done a couple of half marathons in my life and am looking forward to the full version!
Ways to show your support
If you would like to support our runners, please consider donating to their individual or the whole team page on Just Giving.
You could also give them a real boost by joining the #teamMPS cheer squad on the big day.
