See all the latest news, blogs and updates from the medical sector.
Story
Cody's journey in powerchair football: A dream come true
Hear from our member Cody who shares her passion and journey of powerchair football from national to premier league.
18/07/2024
Blog
Together we can transform lives
Head over to the fundraising round-up to read about our biggest fundraising achievements to date. You will be amazed at how much has been raised in just 3 months!
16/07/2024
Condition
SMC accepted pegungalsidase alfa (Elfabrio®) for the long-term treatment of adults with Fabry disease
The Scottish Medicines Consortium (SMC) has accepted pegungalsidase alfa (Elfabrio®), for the long-term treatment of adults with Fabry disease for restricted use.
08/07/2024
Blog
CSAC Update July 2024
Hear from our trustee, Dr Fiona Stewart, as she reflects on the past six months of CSAC achievements and looks ahead to an exciting autumn.
02/07/2024
Condition
Update for patients with late onset LAL D (Lysosomal acid lipase deficiency)
Despite best efforts, NICE was unable to make a recommendation for the use of sebelipase alfa in LAL-D patients with non-Wolman disease.
26/06/2024
Story
Of course I love to score goals!
Hear from Tyler who, after a bilateral hip replacement, is fully embracing his passion for football. He shares how sheer determination to achieve his goals rewarded him places in the Danby Rovers and Mencap England football teams.
21/05/2024
Blog
Helen's story | MPS Awareness Week 2024
Helen's preconceived notions of a wellbeing course were shattered once she tried it. The course helped Helen identify positive aspects of her life and recognise the barriers preventing access to that positivity.
08/05/2024
Blog
Rareminds' counsellors | MPS Awareness Week 2024
The specialist Rareminds counsellors explain the part they play in supporting people living with a rare disease.
01/05/2024
Blog
Together we can transform lives
We've had some amazing fundraisers taking on a whole array of challenges from head shaves to overseas marathons. It has been great to see so many of you getting your fundraising hats on, read you stories.
18/04/2024
News
First prize for the rapid assessment of lysosomal enzyme activity in dried blood spots
CSAC member Simon Heales shares some background on a recent research project of the rapid assessment of lysosomal enzyme activity in dried blood spots which received a research grant from the MPS Society.
