See all the latest news, blogs and updates from the medical sector.
Story
A new chapter for Annie
Annie recently celebrated her 10th post-transplant birthday and very much looked forward to starting secondary school. Her mum Donna shares how the whole family prepared for this exciting new beginning and how the first days went.
19/09/2024
Blog
Back to school 2024
Thanks for sharing your new term, back-to-school photos. We love seeing everyone looking so happy!
18/09/2024
Blog
New beginnings
The summer holidays are always such an exciting time of the year but they can also be the gateway from the familiar to the unknown. Hear from some of our members who have been in the same situation or will be facing new beginnings just like you.
22/08/2024
Story
Wearing it blue for Noah
July marks National Bereaved Parents Awareness Month and we would like to share a heartfelt thank you to Shauna and Steven who have supported the MPS Society with an extraordinary fundraising campaign in memory of their precious son Noah.
25/07/2024
Blog
Alison's Scotland trip
The Support and Advocacy Team have been working on building a sense of community across our membership. A huge part of that has focused on Scotland and saw Alison embarking on an epic trip for MPS Awareness Week.
18/07/2024
Story
Cody's journey in powerchair football: A dream come true
Hear from our member Cody who shares her passion and journey of powerchair football from national to premier league.
18/07/2024
Blog
Together we can transform lives
Head over to the fundraising round-up to read about our biggest fundraising achievements to date. You will be amazed at how much has been raised in just 3 months!
16/07/2024
Condition
SMC accepted pegungalsidase alfa (Elfabrio®) for the long-term treatment of adults with Fabry disease
The Scottish Medicines Consortium (SMC) has accepted pegungalsidase alfa (Elfabrio®), for the long-term treatment of adults with Fabry disease for restricted use.
08/07/2024
Blog
CSAC Update July 2024
Hear from our trustee, Dr Fiona Stewart, as she reflects on the past six months of CSAC achievements and looks ahead to an exciting autumn.
02/07/2024
Condition
Update for patients with late onset LAL D (Lysosomal acid lipase deficiency)
Despite best efforts, NICE was unable to make a recommendation for the use of sebelipase alfa in LAL-D patients with non-Wolman disease.
