See all the latest news, blogs and updates from the medical sector.
Blog
Paddington wears it blue
For over 20 years, Snugburys have been building amazing straw sculptures in support of charity. In 2024, a giant 45ft straw Paddington Bear appeared in their field to raise awareness for the MPS Society.
01/12/2025
Blog
Why I’m fundraising for the MPS Society
Lianne has chosen the MPS Society as her charity for the year and is currently in the middle of a monthly schedule of challenging fundraising activities. She reflects on her achievements so far and why fundraising is so important to her.
01/12/2025
News
New hope for children with devastating rare genetic disorder, thanks to world-first research in Manchester
The parents of a three-year-old boy born with a devastating, life-limiting genetic condition say they are now excited for his future after he received a revolutionary stem cell gene therapy treatment.
24/11/2025
Blog
Sally and Marianne | Big Give Christmas Challenge 2025
Sally and Marianne run the MPS Society community events throughout the year. We caught up with them to discuss how activities are chosen and organised, why affordability matters, plans for 2026 and what makes our events so special.
24/11/2025
Blog
Together we can transform lives
Great runs in London, Manchester and Scotland. Dancers, carnivals, birthday fundraisers with a sprinkling of Christmas in the air. Here's the latest fundraising round-up!
20/11/2025
News
Lessons from Taiwan
Sophie Thomas shares the latest updates from the Newborn Screening Summit & 6th APAC Educational Forum for Families and Caregivers on MPS in Taiwan.
20/11/2025
Story
Mel's story | Big Give Christmas Challenge 2025
Mel explains why the Independent Adult Weekend and meeting others face to face is so important, especially since she's transitioned to adult services.
18/11/2025
Story
Allison's story | Big Give Christmas Challenge 2025
For Allison, the annual Weekend of Remembrance and Hope each September is a profound source of comfort and connection. The weekend offers families a safe and supportive space to honour their loved ones alongside others who truly understand.
11/11/2025
Blog
World Orphan Drug Congress Europe 2025
The World Orphan Drug Congress (WODC) is dedicated to advancing the development and delivery of treatments for rare diseases. It brings together industry leaders, researchers, policymakers, patient advocates and biotech innovators.
05/11/2025
Story
Emily's story | Big Give Christmas Challenge 2025
Emily shares why community events mean so much to our families, from feeling accepted and understood to enjoying a day out away from the everyday challenges and creating new friendships.
