See all the latest news, blogs and updates from the medical sector.
Sally | The Big Give Christmas Challenge 2024
Sally, Senior Support and Advocacy Officer at the MPS Society, reflects on the significance and impact of our community events for families living a rare life.
Kayden's story | MPS III Sanfilippo Awareness Day 2024
On MPS III Awareness Day we are sharing Kayden's story who was diagnosed with the condition aged two after becoming very unwell. His mum Rachel gives an insight into life with MPS III and explains how the family are adapting to Kayden's needs.
Ria's story | The Big Give Christmas Challenge 2024
Attending the annual Weekend of Hope and Remembrance has been a great source of comfort and support to Ria. Her story highlights the importance of being able to step out of everyday life, reflect and share memories with people who can relate.
Nadine's story | The Big Give Christmas Challenge 2024
Nadine explains the importance of getting together and creating memories as a whole family. It’s not just the child with a condition who needs special events, siblings and parents need time to be together in an understanding environment as well.
Archie puts boccia on the map
Have you ever heard of boccia? There is no one better to tell you all about the sport than our member Archie. He shares his infectious passion for boccia and his journey from player to coach.
Representing you
We recognise that when it comes to supporting our members we can do so much more through collaboration. Each month we represent you on a variety of different forums and here’s what we’ve been up to in October.
Together we can transform lives
Take a look at the autumn addition of the fundraising round-up, where you can enjoy reading a wide variety of fundraising challenges.
A new chapter for Annie
Annie recently celebrated her 10th post-transplant birthday and very much looked forward to starting secondary school. Her mum Donna shares how the whole family prepared for this exciting new beginning and how the first days went.
Back to school 2024
Thanks for sharing your new term, back-to-school photos. We love seeing everyone looking so happy!
New beginnings
The summer holidays are always such an exciting time of the year but they can also be the gateway from the familiar to the unknown. Hear from some of our members who have been in the same situation or will be facing new beginnings just like you.