See all the latest news, blogs and updates from the medical sector.
News
Online mindfulness course with Claire Garthwaite
Claire is running two online mindfulness courses that will follow an 8-week programme aimed at those affected by MPS and related diseases.
27/07/2020
News
Young adult webinars by Fabry International Network
FIN is very committed to training the next generation of patient advocates and also providing a platform for young adults.
23/07/2020
Blog
A tribute to Simran Bhachu (16 Sept 1994–5 July 2019)
A tribute to Simran Bhachu
05/07/2020
Blog
Testing times - maintaining specialised laboratory testing under COVID-19
Professor Simon Heales and Dr Derek Burke of the Enzyme Unit at Great Ormond Street Hospital describe their journey through COVID-19 and...
05/06/2020
Condition
Brain disease treatment shows promising signs
Early results for a potentially revolutionary brain disease therapy given under compassionate use to a two-year-old has shown promise.
14/05/2020
Blog
7 ways to have fun in MPS Awareness Week
For this installment of the #WednesdayWebinarSeries we are giving you ideas on how to have fun as part of our MPS Awareness Week campaign!
13/05/2020
Blog
Rainbows
We asked our community to send in their rainbows so we could show our appreciation to NHS staff and other health workers.
28/04/2020
Story
Catherine's journey to sustainability through beauty and fashion
Having an MPS condition hasn't stopped Catherine from finding ways to make a difference to the world.
27/04/2020
Story
Naomi tells us how she's not letting Fabry, or the lockdown, get in the way of future dreams
It's Fabry Awareness Month and like many people living with Fabry Disease Naomi is finding ways to stay positive and motivated
22/04/2020
News
Paediatric advice on clinical support and homecare (updated 26 March)
Paediatric clinical advice on homecare and clinical support (currently under revision).
