See all the latest news, blogs and updates from the medical sector.
Story
January Fundraiser of the Month - Marina and Friends
We were so sorry to hear that Marina passed away in January 2023, our thoughts go out to her family. Marina accomplished so much for the...
04/01/2022
News
Think Rare, Think MPS
The Society for Mucopolysaccharide Diseases (MPS Society) is committed to bringing about change in the diagnostic journey of children...
17/12/2021
Blog
Hannah's story - The Big Give Christmas Challenge 2021
Hannah tells us why support services from the MPS Society are so important and how you can double your donation to fund them this Christmas.
23/11/2021
Story
Lucy's story - The Big Give Christmas Challenge 2021
Lucy tells us why support services from the MPS Society are so important and how you can double your donation to fund them this Christmas.
23/11/2021
Story
Dan's story - The Big Give Christmas Challenge 2021
Dan tells us why support services from the MPS Society are so important and how you can double your donation to fund them this Christmas.
15/11/2021
Condition
NICE leans towards a no for the treatment of MPS IVA (Morquio A)
NICE (National Institute of Clinical Excellence), the drug decision making body in England, have publicly released their interim decision to
12/11/2021
Story
Jorden's story - The Big Give Christmas Challenge 2021
Jorden tells us why support services from the MPS Society are so important and how you can double your donation to fund them this Christmas.
09/11/2021
Story
An interview with Isabelle
Isabelle Clarke is the sister of Lilia Clarke who was recently diagnosed with MPS III. Here, she shares her story about Lilia's diagnosis.
02/11/2021
News
Hunter Outcome Survey
The latest Hunter Outcome Survey (HOS) for 2020 has been released. We hope that this report will help patients and caregivers who are...
26/10/2021
Blog
Back to school photos
Thank you to everyone who sent their back to school photos in after we put out an ask on social media last week. Here are the ones we've...
