See all the latest news, blogs and updates from the medical sector.
News
Think Rare, Think MPS
The Society for Mucopolysaccharide Diseases (MPS Society) is committed to bringing about change in the diagnostic journey of children...
17/12/2021
Blog
Hannah's story - The Big Give Christmas Challenge 2021
Hannah tells us why support services from the MPS Society are so important and how you can double your donation to fund them this Christmas.
23/11/2021
Condition
NICE leans towards a no for the treatment of MPS IVA (Morquio A)
NICE (National Institute of Clinical Excellence), the drug decision making body in England, have publicly released their interim decision to
12/11/2021
News
Hunter Outcome Survey
The latest Hunter Outcome Survey (HOS) for 2020 has been released. We hope that this report will help patients and caregivers who are...
26/10/2021
Blog
Back to school photos
Thank you to everyone who sent their back to school photos in after we put out an ask on social media last week. Here are the ones we've...
21/09/2021
News
MPS Society’s Group CEO elected to the ABPI’s new Patient Advisory Council
We are thrilled to announce that our Group CEO, Bob Stevens, is one of the eight leaders from across the patient and health charity...
07/09/2021
News
Rareminds: MPS Society counselling launch
We are pleased to launch our new counselling service at the MPS Society for patients and family members.
07/09/2021
News
COVID-19 vaccination for children and young people aged 12-17 years
It is recognised that a small number of children and young people aged 12-17 years with specific underlying health conditions may be at...
30/07/2021
Condition
NICE unfortunately leans towards a no for the treatment of Metachromatic Leukodystrophy (MLD).
The drug decision-making body NICE (National Institute of Clinical Excellence) has publicly released its interim decision today (9 July...
13/07/2021
News
Willow Foundation Special Days and Treats
For people living with a life-threatening illness, every day is precious. The pressures of diagnosis, treatment and recovery can have a...
