See all the latest news, blogs and updates from the medical sector.
News
Kelly Mills' charity appeal for MPS Society on Radio 4
Thank you so much to everyone who donated to the Radio 4 appeal after hearing Kelly talk about her daughter, Penny, and her experience of...
04/11/2020
Blog
So what does clinical trial support services actually mean? Lianne from RDRP reveals all
From clinical trials support and specialist medical communications to research and real-world evidence, Rare Disease Research Partners...
09/10/2020
Condition
AVROBIO announce collaborative research agreement with Manchester university for MPS II gene therapy
AVROBIO announce collaborative research agreement with Manchester university for MPS II gene therapy.
04/10/2020
Condition
REGENXBIO announces expansion of gene therapy programme for the treatment of MPS II
REGENXBIO have released an update on the progress of their investigational gene therapy programme for MPS II Hunters disease.
02/10/2020
Blog
Back to school - September 2020 brings mixed emotions for our families
After many months of parents across the country tasked with teaching their children from home, our families have shared their back to...
21/09/2020
News
Tune in to Kelly Mills' charity appeal for MPS Society on Radio 4 this month
Tune in to hear Kelly's appeal for MPS Society on Radio 4 this month.
09/09/2020
Blog
Get baking with The Big Big Blue Bake Off
Video tutorial and virtual ideas for a baking challenge to support The Big Blue Bake Off.
19/08/2020
Blog
MPS has talent - the MPS Society talent show
MPS has talent is the MPS Society talent show which this year has been put together using videos sent in by our members.
12/08/2020
Blog
Treats For All
We provided vouchers to families and individuals as a one-off gift to help offer some relief during a stressful time.
05/08/2020
News
Using UK Personal Child Health Records (Red Book) to investigate early indicators of MPS disorders
This study provides insights into early indicators of MPS disorders by using parent-held child health records of children based in the UK.
