What is the PPPN?
The Patient Professional Partnership Network (PPPN) is a pioneering cross-sector initiative established in 2023 under the LSD Collaborative.
Who’s involved?
Patient organisations, clinicians (medical consultants and specialist nurses), NHS England HSS Commissioning team, diagnostic services, and British Inherited Metabolic Disease Group.
About the project
11 National guidelines have been developed, reviewed and approved by the PPPN
MPS I, II, III, IVA, VI
LALD (Wolman), Fabry, Alpha Mannosidosis
Pompe (IOPD), Pompe (LOPD) Niemann-Pick type C (NPC)
