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CSAC Open Day 2026

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Catch up on the 2026 CSAC Open Day webinar.

The Clinical Scientific Advisory Committee (CSAC) at the MPS Society is a committee of members from medical, healthcare or research backgrounds who consider applications for funding for the best interests of our MPS and Fabry community.

Dr Fiona Stewart and Prof Derralynn Hughes were in conversation with researchers to discover the stories behind their projects. You will learn how they were launched, the challenges encountered along the way and current progress.

Agenda

  • Improving detection methods and analysis of glycosaminoglycans for mucopolysaccharidosis patients using ToF-SIMS // Arya Ajayakumar

  • Co-design of a physical activity and sedentary behaviour intervention for adults with mucopolysaccharidosis / Physical activity and sedentary behaviour in the enhancement of mental health and quality of life in Fabry disease // Sarah Gosling and Dan Bailey

  • Causes, prevention and treatment of stroke in Fabry disease // David Moreno Martinez

  • How can we prognosticate airway and respiratory function decline in mucopolysaccharidosis type IVA // Johnny Kenth

  • Q&A


Find out more about CSAC and the work they do here.

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