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Beginning of a rare life

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Dr Fiona Stewart welcomes a parent panel to share some of their real-life experiences and impressions of attending an MPS community weekend for the first time.

Fiona: What do you remember from your first conference?

Yvette: I was very scared when I first came and what I was seeing in front of me but within the first half hour I felt very different, very looked after, it was like a big hug.

Fiona: What would you like to tell other people that you have learned?

Catherine: My biggest word is, there is hope, there is a lot of research going on but you have to fight and fight.

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