Dr Fiona Stewart welcomes a parent panel to share some of their real-life experiences and impressions of attending an MPS community weekend for the first time.
Fiona: What do you remember from your first conference?
Yvette: I was very scared when I first came and what I was seeing in front of me but within the first half hour I felt very different, very looked after, it was like a big hug.
Fiona: What would you like to tell other people that you have learned?
Catherine: My biggest word is, there is hope, there is a lot of research going on but you have to fight and fight.