See all the latest news, blogs and updates from the medical sector.
Story
Patricia's personal experience of coping with grief
Patricia shares her story in National Grief Awareness Week of losing her beloved daughter, Helen, who died in 2016.
02/12/2022
Story
December Fundraiser of the Month - The Brown family
This month's fundraiser of the month is the Brown family. Mum, Vikki shares their story.
30/11/2022
Story
Tom's story - The Big Give Christmas Challenge 2022
"Getting the emotional and practical support from the MPS Society makes me feel less alone. It’s just good to know they are always there”
28/11/2022
News
Receive a gift this Christmas in our toy giveaway
We are pleased that our charity has been lucky enough to receive donations of toys and gifts that we are able to share with our community.
22/11/2022
News
Christine Lavery Memorial Fund opens a call for applications for summer vacation studentships 2023
The MPS Society are delighted to announce that we are launching the Christine Lavery Memorial Fund on 21 November, Christine’s birthday,...
21/11/2022
Story
Kim's story - The Big Give Christmas Challenge 2022
Kim Coney, is mum to Tom (26) who has MPS VI (Maroteaux-Lamy), a mucopolysaccharide disease where a build-up of sugar molecules in the...
21/11/2022
Blog
My good friend, Christine
Wilma, trustee of the MPS Society, mother to an MPS child and great friend to Christine, shares her memories of a special woman. I was...
15/11/2022
Story
Larraine's story - The Big Give Christmas Challenge 2022
Hi, I’m Larraine and I have MPS IVA Morquio. The MPS Society has asked me to share my story with you all for this year’s Big Give Christmas
14/11/2022
Blog
Judith's memories of Christine Lavery
I hardly know where to begin with memories of Christine – there is a saying “memories are ours to treasure” and I treasure so many of my...
10/11/2022
Condition
NICE leans towards a no for the treatment of Alpha Mannosidosis
NICE release interim decision not to recommend Velmanase alfa (Lamzede®) for alpha mannosidosis.
