See all the latest news, blogs and updates from the medical sector.
Condition
AVROBIO announce collaborative research agreement with Manchester university for MPS II gene therapy
AVROBIO announce collaborative research agreement with Manchester university for MPS II gene therapy.
04/10/2020
Condition
REGENXBIO announces expansion of gene therapy programme for the treatment of MPS II
REGENXBIO have released an update on the progress of their investigational gene therapy programme for MPS II Hunters disease.
02/10/2020
Story
Shielding, shopping and PPE - one family's story of their time in lockdown
The Brentnall family sent us this uplifting story about how they coped whilst shielding with their vulnerable son, the challenges they...
25/09/2020
Story
Back to school - making the right choice for both my daughters
Imtiaz, father of Anya who has MPS III Sanfilippo, shared his family's experience of returning to school this term and the difficult...
21/09/2020
Blog
Back to school - September 2020 brings mixed emotions for our families
After many months of parents across the country tasked with teaching their children from home, our families have shared their back to...
21/09/2020
Story
Overcoming all fears when transitioning to higher education
We caught up with Aisha Seedat who graduated from university this year.
10/09/2020
News
Tune in to Kelly Mills' charity appeal for MPS Society on Radio 4 this month
Tune in to hear Kelly's appeal for MPS Society on Radio 4 this month.
09/09/2020
Story
Pre-lockdown school trip to New York City
In this blog post, we talk about Hannah’s exciting school trip to ‘The Big Apple’ earlier this year. Hannah is 17 years old and has MPS...
03/09/2020
Story
MPS lockdown diaries
We’re delighted to share some wonderful poetry, personal stories, birthday celebrations and more from our unique pandemic perspective.
03/09/2020
Blog
Get baking with The Big Big Blue Bake Off
Video tutorial and virtual ideas for a baking challenge to support The Big Blue Bake Off.
