See all the latest news, blogs and updates from the medical sector.
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Jorden's story - The Big Give Christmas Challenge 2021
Jorden tells us why support services from the MPS Society are so important and how you can double your donation to fund them this Christmas.
09/11/2021
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An interview with Isabelle
Isabelle Clarke is the sister of Lilia Clarke who was recently diagnosed with MPS III. Here, she shares her story about Lilia's diagnosis.
02/11/2021
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Lexie's story
Lexie's sister Tillie Mae has MPS IIIA. Here, she shares her story about what it's like growing up with a sister who has a rare disease....
21/05/2021
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A year in lockdown
With the world slowly opening up again, the Brentnall family are coming to terms with lockdown easing and normal life resuming. Here,...
07/05/2021
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Gunner's story
Gunner has recently been diagnosed with MPS I Hurler. His mum, Holly, tells MPS Society about Gunner's diagnosis. Update 07 June 2021:...
16/04/2021
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Facing all obstacles and striving for a career of my choice
Faye, who lives with MPS IV Morquio, has overcome many hurdles to find accessible opportunities which allowed her to find the job role...
29/01/2021
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Sheryl's story - The Big Give Christmas Challenge 2020
I’m Sheryl and I'll be supporting the Big Give Christmas Challenge because MPS Society events are important at every stage of your journey
17/11/2020
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Sam's story - The Big Give Christmas Challenge 2020
Sam is 18 living with ML III and for him, the family events meant connecting with others who understand what he's going through.
09/11/2020
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Shielding, shopping and PPE - one family's story of their time in lockdown
The Brentnall family sent us this uplifting story about how they coped whilst shielding with their vulnerable son, the challenges they...
25/09/2020
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Back to school - making the right choice for both my daughters
Imtiaz, father of Anya who has MPS III Sanfilippo, shared his family's experience of returning to school this term and the difficult...
