See all the latest news, blogs and updates from the medical sector.
Story
Lexie's story
Lexie's sister Tillie Mae has MPS IIIA. Here, she shares her story about what it's like growing up with a sister who has a rare disease....
21/05/2021
Story
A year in lockdown
With the world slowly opening up again, the Brentnall family are coming to terms with lockdown easing and normal life resuming. Here,...
07/05/2021
Story
Gunner's story
Gunner has recently been diagnosed with MPS I Hurler. His mum, Holly, tells MPS Society about Gunner's diagnosis. Update 07 June 2021:...
16/04/2021
Story
Facing all obstacles and striving for a career of my choice
Faye, who lives with MPS IV Morquio, has overcome many hurdles to find accessible opportunities which allowed her to find the job role...
29/01/2021
Story
Sheryl's story - The Big Give Christmas Challenge 2020
I’m Sheryl and I'll be supporting the Big Give Christmas Challenge because MPS Society events are important at every stage of your journey
17/11/2020
Story
Sam's story - The Big Give Christmas Challenge 2020
Sam is 18 living with ML III and for him, the family events meant connecting with others who understand what he's going through.
09/11/2020
Story
Shielding, shopping and PPE - one family's story of their time in lockdown
The Brentnall family sent us this uplifting story about how they coped whilst shielding with their vulnerable son, the challenges they...
25/09/2020
Story
Back to school - making the right choice for both my daughters
Imtiaz, father of Anya who has MPS III Sanfilippo, shared his family's experience of returning to school this term and the difficult...
21/09/2020
Story
Overcoming all fears when transitioning to higher education
We caught up with Aisha Seedat who graduated from university this year.
10/09/2020
Story
Pre-lockdown school trip to New York City
In this blog post, we talk about Hannah’s exciting school trip to ‘The Big Apple’ earlier this year. Hannah is 17 years old and has MPS...
