See all the latest news, blogs and updates from the medical sector.
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Living with Fabry
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease.
29/03/2023
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My personal journey of living rare by Claire
32, young, fun, living life and boom hit by what I can only describe as a tidal wave of fatigue and body pain that came from nowhere.
29/03/2023
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Patricia's personal experience of coping with grief
Patricia shares her story in National Grief Awareness Week of losing her beloved daughter, Helen, who died in 2016.
02/12/2022
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December Fundraiser of the Month - The Brown family
This month's fundraiser of the month is the Brown family. Mum, Vikki shares their story.
30/11/2022
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Tom's story - The Big Give Christmas Challenge 2022
"Getting the emotional and practical support from the MPS Society makes me feel less alone. It’s just good to know they are always there”
28/11/2022
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Kim's story - The Big Give Christmas Challenge 2022
Kim Coney, is mum to Tom (26) who has MPS VI (Maroteaux-Lamy), a mucopolysaccharide disease where a build-up of sugar molecules in the...
21/11/2022
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Larraine's story - The Big Give Christmas Challenge 2022
Hi, I’m Larraine and I have MPS IVA Morquio. The MPS Society has asked me to share my story with you all for this year’s Big Give Christmas
14/11/2022
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When the unimaginable happens
As the world entered a new era, twenty years ago, of joy and optimism, for some life was taking them on a different course, to somewhere...
20/09/2022
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Natasha's story - how we're making life more bearable
Natasha shared her story of her daughter's diagnosis and the difference the expert help from our Support and Advocacy Team has made to her.
02/08/2022
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Sam's story - MPS Awareness Week
For MPS Awareness Week this year, we are looking at chasing the signs of MPS and raising awareness of the disease. Sam Brown was...
