See all the latest news, blogs and updates from the medical sector.
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Larraine's story - The Big Give Christmas Challenge 2022
Hi, I’m Larraine and I have MPS IVA Morquio. The MPS Society has asked me to share my story with you all for this year’s Big Give Christmas
14/11/2022
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When the unimaginable happens
As the world entered a new era, twenty years ago, of joy and optimism, for some life was taking them on a different course, to somewhere...
20/09/2022
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Natasha's story - how we're making life more bearable
Natasha shared her story of her daughter's diagnosis and the difference the expert help from our Support and Advocacy Team has made to her.
02/08/2022
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Sam's story - MPS Awareness Week
For MPS Awareness Week this year, we are looking at chasing the signs of MPS and raising awareness of the disease. Sam Brown was...
05/05/2022
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Sophia's story - MPS Awareness Week
For MPS Awareness Week this year, we are looking at chasing the signs of MPS and raising awareness of the disease. Sophia Scott from...
05/05/2022
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Jean's story - MPS Awareness Week
For MPS Awareness Week this year, we are looking at chasing the signs of MPS and raising awareness of the disease. Jean "Wee Jean"...
05/05/2022
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Steven's story - Fabry Awareness Month
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease....
31/03/2022
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Living life with MPS IVA - Joanne's inspirational story
Joanne was diagnosed with MPS IVA Morquio when she was three years old and her mother Judith Evans, one of our lovely trustees opens up...
09/03/2022
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Why Amy is a unique lady
Amy Cooper, from Hampshire, is 35 years old and has MPS I Hurler. She is one of the few people who underwent a Bone Marrow Transplant at...
28/02/2022
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January Fundraiser of the Month - Marina and Friends
We were so sorry to hear that Marina passed away in January 2023, our thoughts go out to her family. Marina accomplished so much for the...
