See all the latest news, blogs and updates from the medical sector.
Blog
Thank you Katie and Churchill Park Academy
We would like to say a big thank you to Katie Mackelden who, along with Churchill Park Academy, raised £737.00 during MPS Awareness Week....
04/07/2023
News
Together we can transform lives
Thank you to our amazing fundraisers for the support you have shown us over the past month, let's celebrate your achievements.
03/07/2023
Condition
Gene therapy clinical trial for patients with MPS II Hunter opens in Manchester
A new gene therapy clinical trial for patients with MPS II Hunter disease is opening in Manchester.
16/06/2023
Condition
NICE unfortunately leans towards a ‘no’ for the treatment of early onset LAL D (Wolman disease)
NICE (National Institute of Clinical Excellence), the drug decision making body, have publicly released their interim decision today not...
05/06/2023
Blog
Navigating the NHS by Claire
I may seem a little obsessed, maybe I am, but when you are fighting for your life, for your health, you’ll leave no stone unturned.
29/03/2023
Blog
They had an absolute ball
It was dancing shoes at the ready for the Winter Ball, hosted by the Scott family, on 3rd February, all in honour of their daughter...
23/03/2023
Blog
We hear from Judith Evans
All good things come to an end…so the saying goes…..and earlier this year James Garthwaite told the Board that he wished to stand down...
16/12/2022
News
Receive a gift this Christmas in our toy giveaway
We are pleased that our charity has been lucky enough to receive donations of toys and gifts that we are able to share with our community.
22/11/2022
News
Christine Lavery Memorial Fund opens a call for applications for summer vacation studentships 2023
The MPS Society are delighted to announce that we are launching the Christine Lavery Memorial Fund on 21 November, Christine’s birthday,...
21/11/2022
Blog
My good friend, Christine
Wilma, trustee of the MPS Society, mother to an MPS child and great friend to Christine, shares her memories of a special woman. I was...
