See all the latest news, blogs and updates from the medical sector.
Building a fitness brand: the motivation and challenges behind SabreFit
Sam, founder of SabreFit explains the inspiration behind his fitness clothing line and why he is donating his profits to the MPS Society this Christmas.
Why I’m fundraising for the MPS Society
Lianne has chosen the MPS Society as her charity for the year and is currently in the middle of a monthly schedule of challenging fundraising activities. She reflects on her achievements so far and why fundraising is so important to her.
Little Bus Big Ride
To celebrate their family business turning 100 years old, three brothers from Nantwich, Cheshire decided to embark on the adventure of a lifetime.
Paddington wears it blue
For over 20 years, Snugburys have been building amazing straw sculptures in support of charity. In 2024, a giant 45ft straw Paddington Bear appeared in their field to raise awareness for the MPS Society.
New hope for children with devastating rare genetic disorder, thanks to world-first research in Manchester
The parents of a three-year-old boy born with a devastating, life-limiting genetic condition say they are now excited for his future after he received a revolutionary stem cell gene therapy treatment.
Sally and Marianne | Big Give Christmas Challenge 2025
Sally and Marianne run the MPS Society community events throughout the year. We caught up with them to discuss how activities are chosen and organised, why affordability matters, plans for 2026 and what makes our events so special.
Together we can transform lives
Great runs in London, Manchester and Scotland. Dancers, carnivals, birthday fundraisers with a sprinkling of Christmas in the air. Here's the latest fundraising round-up!
Lessons from Taiwan
Sophie Thomas shares the latest updates from the Newborn Screening Summit & 6th APAC Educational Forum for Families and Caregivers on MPS in Taiwan.
World Orphan Drug Congress Europe 2025
The World Orphan Drug Congress (WODC) is dedicated to advancing the development and delivery of treatments for rare diseases. It brings together industry leaders, researchers, policymakers, patient advocates and biotech innovators.
Get involved in research more easily with RDRP's research registration
Help shape the future of rare conditions by signing up to take part in research. Find out why it's important and how to hear about research opportunities.