Join Dave on his journey to his first ever Fabrazyme infusion in this self-recorded video. Dave offers a valuable glimpse into what it is like to begin enzyme replacement therapy. Thank you for sharing this important milestone with us!
This video shares my journey from the Highlands of Scotland to Glasgow for my very first Fabrazyme infusion at the Queen Elizabeth University Hospital.
On 12 June 2025, I travelled down from north of Inverness, ready for an 8:30am appointment the following morning.
The day in hospital was long, my infusion lasted most of the day as the team monitored me carefully for any reactions to the enzyme.
After staying overnight, I travelled back to Inverness. This was just the start of treatment. Over three hospital visits, my dose was gradually increased and the infusion time shortened.
Once the doctors were confident it was safe, my infusions then continued at home with a nurse visiting every two weeks.
What is Fabrazyme?
Fabrazyme is an enzyme replacement therapy (ERT) that replaces the missing enzyme. While it isn’t a cure, it helps reduce the harmful build-up of substances in the body. Infusions are given every two weeks, and with time, the therapy can help slow the progression of the condition and improve quality of life.
This video documents not just the miles travelled from the Highlands to Glasgow, but also the beginning of a lifelong treatment journey with Fabrazyme.
