See all the latest news, blogs and updates from the medical sector.
News
MPS Society celebrates after receiving £10,000 in National Lottery funding
The MPS Society is celebrating today after being awarded £10,000 in funding from The National Lottery Community Fund, the largest funder...
14/06/2022
Condition
NICE provides positive feedback
Following the recent news that Elosulfase alfa (Vimizim) has been recommended by NICE (National Institute for Health and Care Excellence)...
08/06/2022
Blog
June Fundraiser of the Month - Anthony Wright
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have Anthony...
31/05/2022
Condition
Takeda to discontinue their TAK-609 clinical trial
It is with great sadness to announce that last week, Takeda announced that after 8 years, they would not be continuing with their trial...
27/05/2022
Blog
May Fundraiser of the Month - Ethan Fanneran-Burley and family
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have Katrina...
29/04/2022
Blog
Living with Fabry: Loretta's story - Fabry Awareness Month
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease....
28/04/2022
Blog
Donna's story - Fabry Awareness Month
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease....
21/04/2022
Blog
Living with Fabry: Naomi's story - Fabry Awareness Month
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease....
14/04/2022
Blog
Derralynn's story - Fabry Awareness Month
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease....
05/04/2022
Blog
April Fundraiser of the Month - Steven Gill
Steven Gill shares his connection to Fabry and why he's chosen to take on a huge fundraising challenge.
