See all the latest news, blogs and updates from the medical sector.
Blog
August Fundraiser of the Month - Elliot Moody
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have Elliot...
01/08/2022
News
Footsteps Dance School raises funds in honour of Isaac Turner
The MPS Society has been working with Footsteps Dance School on their annual dance performance 'Steppin' Out 2022' as they wanted to...
14/07/2022
Blog
July Fundraiser of the Month - The Cooling family
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have the...
30/06/2022
Condition
Fabry experiment trial to improve cardiac outcomes
Fabry disease is a genetic condition which leads to accumulation of fat or “sphingolipid” within the tissues, in particular the heart...
29/06/2022
News
MPS Society celebrates after receiving £10,000 in National Lottery funding
The MPS Society is celebrating today after being awarded £10,000 in funding from The National Lottery Community Fund, the largest funder...
14/06/2022
Condition
NICE provides positive feedback
Following the recent news that Elosulfase alfa (Vimizim) has been recommended by NICE (National Institute for Health and Care Excellence)...
08/06/2022
Blog
June Fundraiser of the Month - Anthony Wright
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have Anthony...
31/05/2022
Condition
Takeda to discontinue their TAK-609 clinical trial
It is with great sadness to announce that last week, Takeda announced that after 8 years, they would not be continuing with their trial...
27/05/2022
Blog
May Fundraiser of the Month - Ethan Fanneran-Burley and family
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have Katrina...
29/04/2022
Blog
Living with Fabry: Loretta's story - Fabry Awareness Month
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease....
