See all the latest news, blogs and updates from the medical sector.
Blog
They had an absolute ball
It was dancing shoes at the ready for the Winter Ball, hosted by the Scott family, on 3rd February, all in honour of their daughter...
23/03/2023
Blog
We hear from Judith Evans
All good things come to an end…so the saying goes…..and earlier this year James Garthwaite told the Board that he wished to stand down...
16/12/2022
News
Receive a gift this Christmas in our toy giveaway
We are pleased that our charity has been lucky enough to receive donations of toys and gifts that we are able to share with our community.
22/11/2022
News
Christine Lavery Memorial Fund opens a call for applications for summer vacation studentships 2023
The MPS Society are delighted to announce that we are launching the Christine Lavery Memorial Fund on 21 November, Christine’s birthday,...
21/11/2022
Blog
My good friend, Christine
Wilma, trustee of the MPS Society, mother to an MPS child and great friend to Christine, shares her memories of a special woman. I was...
15/11/2022
Blog
Judith's memories of Christine Lavery
I hardly know where to begin with memories of Christine – there is a saying “memories are ours to treasure” and I treasure so many of my...
10/11/2022
Condition
NICE leans towards a no for the treatment of Alpha Mannosidosis
NICE release interim decision not to recommend Velmanase alfa (Lamzede®) for alpha mannosidosis.
10/11/2022
Blog
Victoria's story - The Big Give Christmas Challenge 2022
Victoria, a support and advocacy worker at MPS Society, shares her story for the Big Give Christmas Challenge.
07/11/2022
Blog
November Fundraiser of the Month - The Scott family
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have the...
01/11/2022
Blog
October Fundraiser of the Month - Duncan Clarke
Our fundraiser of the month in October is Duncan Clarke, uncle to Lilia, who is completing a marathon a month this year.
