See all the latest news, blogs and updates from the medical sector.
Blog
Louise's story - The Big Give Christmas Challenge 2020
Meeting families in person has supported my learning about these conditions and my understanding about the challenges families face.
23/11/2020
Blog
So what does clinical trial support services actually mean? Lianne from RDRP reveals all
From clinical trials support and specialist medical communications to research and real-world evidence, Rare Disease Research Partners...
09/10/2020
Blog
Back to school - September 2020 brings mixed emotions for our families
After many months of parents across the country tasked with teaching their children from home, our families have shared their back to...
21/09/2020
Blog
Get baking with The Big Big Blue Bake Off
Video tutorial and virtual ideas for a baking challenge to support The Big Blue Bake Off.
19/08/2020
Blog
MPS has talent - the MPS Society talent show
MPS has talent is the MPS Society talent show which this year has been put together using videos sent in by our members.
12/08/2020
Blog
Treats For All
We provided vouchers to families and individuals as a one-off gift to help offer some relief during a stressful time.
05/08/2020
Blog
Have your say to improve services for ultra-rare diseases
If you are affected by an ultra-rare disease we need your help to make support change and improve your care and services.
29/07/2020
Blog
A tribute to Simran Bhachu (16 Sept 1994–5 July 2019)
A tribute to Simran Bhachu
05/07/2020
Blog
Testing times - maintaining specialised laboratory testing under COVID-19
Professor Simon Heales and Dr Derek Burke of the Enzyme Unit at Great Ormond Street Hospital describe their journey through COVID-19 and...
05/06/2020
Blog
7 ways to have fun in MPS Awareness Week
For this installment of the #WednesdayWebinarSeries we are giving you ideas on how to have fun as part of our MPS Awareness Week campaign!
