See all the latest news, blogs and updates from the medical sector.
Blog
Could it be Fabry? A response
Commentary by Professor Atul Mehta, formerly Director of the Lysosomal Diseases Centre, Royal Free Hospital and University College London...
27/04/2021
Blog
We welcome Mandy who has started a brand new role at the MPS Society
Mandy Carey, Head of Project Delivery at the MPS Society, explains her past experience and current plans. I am delighted to have joined...
23/04/2021
Blog
What's new for Sophie?
Sophie Thomas, our Senior Head of Patient Services and Clinical Liaisons explains her change in role at the MPS Society and new work with...
23/04/2021
Blog
Could it be Fabry? A plea from the heart
This Fabry Awareness month we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a Fabry...
22/04/2021
Blog
Look into my eyes and ask, "could it be Fabry?"
This Fabry Awareness Month, we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a...
15/04/2021
Blog
Could it be Fabry? The beginning
This Fabry Awareness month we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a Fabry...
08/04/2021
Blog
Lockdown positivity
We asked you what you're doing to keep positive and stay healthy during lockdown this time round. The COVID-19 pandemic has affected...
15/01/2021
Blog
Daniella Vandepeer discusses her clinical trial experience
Daniella Vandepeer shares her experiences of family life on a clinical trial including her motivation for joining a trial, the difficulties the family faces and what she feels is important for others considering joining a clinical trial.
13/12/2020
Blog
Louise's story - The Big Give Christmas Challenge 2020
Meeting families in person has supported my learning about these conditions and my understanding about the challenges families face.
23/11/2020
Blog
So what does clinical trial support services actually mean? Lianne from RDRP reveals all
From clinical trials support and specialist medical communications to research and real-world evidence, Rare Disease Research Partners...
