See all the latest news, blogs and updates from the medical sector.
Blog
Look into my eyes and ask, "could it be Fabry?"
This Fabry Awareness Month, we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a...
15/04/2021
Blog
Could it be Fabry? The beginning
This Fabry Awareness month we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a Fabry...
08/04/2021
Blog
Lockdown positivity
We asked you what you're doing to keep positive and stay healthy during lockdown this time round. The COVID-19 pandemic has affected...
15/01/2021
Blog
Daniella Vandepeer discusses her clinical trial experience
Daniella Vandepeer shares her experiences of family life on a clinical trial including her motivation for joining a trial, the difficulties the family faces and what she feels is important for others considering joining a clinical trial.
13/12/2020
Blog
Louise's story - The Big Give Christmas Challenge 2020
Meeting families in person has supported my learning about these conditions and my understanding about the challenges families face.
23/11/2020
Blog
So what does clinical trial support services actually mean? Lianne from RDRP reveals all
From clinical trials support and specialist medical communications to research and real-world evidence, Rare Disease Research Partners...
09/10/2020
Blog
Back to school - September 2020 brings mixed emotions for our families
After many months of parents across the country tasked with teaching their children from home, our families have shared their back to...
21/09/2020
Blog
Get baking with The Big Big Blue Bake Off
Video tutorial and virtual ideas for a baking challenge to support The Big Blue Bake Off.
19/08/2020
Blog
MPS has talent - the MPS Society talent show
MPS has talent is the MPS Society talent show which this year has been put together using videos sent in by our members.
12/08/2020
Blog
Treats For All
We provided vouchers to families and individuals as a one-off gift to help offer some relief during a stressful time.
