MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
The educational journey of individuals with MPS II Hunter Disease in the United Kingdom
This poster shares the findings of a research project that looked at the cognitive variability in patients with MPS II to understand their needs and support requirements in an educational setting.
Hunter Outcome Survey Patient Report 2023
Read the 2023 annual update of the Hunter Outcome Survey (HOS), a large disease registry which has facilitated the collection of data on the signs symptoms and progression of MPS II.
MPS II Hunter disease - information for individuals, parents and families
We know that being diagnosed with a rare disease is life-changing and you can struggle to come to terms with it. Therefore, we have...