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Understanding Fabry disease

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We know that being diagnosed with a rare disease is life-changing and you can struggle to come to terms with it. Therefore, we have created some animations for you to learn more about the diseases and how we can help you to live well with them.

Fabry is a rare and often complex condition, with its own range of symptoms and different degrees of severity that changes from one person to the next and across different stages of life.

We developed the animations through a series of workshops with people living with the diseases and so had a real insight into the way they live with and understand the diseases.

With thanks to Design Science who created this series of animations.


Fabry Matters Conference 2024

1 Mar, 15:00 – 3 Mar 2024, 12:00

Join us in this ground-breaking approach to Fabry collaboration for the benefit of our community.

See the full event details for more information and registration.

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