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Understanding Fabry disease - information for parents and families


We know that being diagnosed with a rare disease is life-changing and you can struggle to come to terms with it. Therefore, we have created some disease booklets for you to learn more about the diseases and how we can help you to live well with them.

Fabry is a rare and often complex disease, with its own range of symptoms and different degrees of severity that changes from one person to the next and across different stages of life.

Read more about Fabry disease here:

Fabry Matters Conference 2024

1 Mar, 15:00 – 3 Mar 2024, 12:00

Join us in this ground-breaking approach to Fabry collaboration for the benefit of our community.

See the full event details for more information and registration.

Click to download

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