In the latest edition of our new-look newsletter you can read about the impact our supporters have helped us to make in 2019, the family events they've helped to fund throughout the year, how we are reacting to feedback on the services we offer and the difference the COVID pandemic is making to our members and the way we support them. You can view the newsletter below, download a PDF or request a paper copy.
Thank you to everyone who shared their feedback, photos and stories for this newsletter. If you have a fundraising story or a story on your journey with MPS, Fabry or a related disease, please share it with us.
If you would like to help the MPS Society transform the lives of people with MPS, Fabry and related disease through research, awareness and support please donate now.