See all the latest news, blogs and updates from the medical sector.
Story
Naomi tells us how she's not letting Fabry, or the lockdown, get in the way of future dreams
It's Fabry Awareness Month and like many people living with Fabry Disease Naomi is finding ways to stay positive and motivated
22/04/2020
News
Paediatric advice on clinical support and homecare (updated 26 March)
Paediatric clinical advice on homecare and clinical support (currently under revision).
24/03/2020
News
Key points from coronavirus webinar hosted by The Worldwide Hospice Palliative Care Alliance
WHPCA webinar on coronavirus and people with serious conditions and underlying health issues
23/03/2020
News
Changes to our service as a result of COVID-19
Due to the changing situation with the COVID-19 outbreak the MPS Society (including RDRP) has taken the decision to close our offices and...
16/03/2020
News
MPS Society response to Budget announcement
Following Rishi Sunak's Budget speech, the chief executive of MPS Society has released a statement concerning funding for rare diseases.
11/03/2020
News
Neglected diseases - letter to The Times
Heads of more than 35 charities have written to The Times to ask NICE that rare diseases get fair and equal access to treatment.
02/03/2020
Condition
Vimizim re-evaluation process suspended - NICE's statement and MPS Society's response
NICE have today (28 February 2020) released the following statement in regards to the re-evaluation of Vimizim under the terms of the MAA.
28/02/2020
Blog
A brief history of the MAA
This year, 2020, will bring many NICE things. In memory of the foresight of the founder of the MPS Society, Christine Lavery, we would...
26/02/2020
Blog
An interview with Louise Emerson - Specialist Speech and Language Therapist at GOSH
We asked Louise if she would answer a few questions about her work with us and our members How long have you been working at Great Ormond...
